Please, please could anyone give me advice! I am new to this site. I was diagnosed with Graves’ disease and hyperthyroidism in September 2019, 13 months ago. My endocrinologist has now told me my condition will not reverse / stabilize on carbimazole as I couldnt get down to 5mg a day without my levels rising. She is now pushing me to have RAI or partial thyroidectomy which I am not happy with yet - especially reading some of the comments on this site. Have I been given enough time do you think?
When first diagnosed my TSH was <0.02, T3 was 18.7 and T4 was 59.7. I was started on 30mg of carbimazole - also propanalol, whilst continuing to take 100mg of sertraline for depression. The next month it was reduced to 10mg but levels rose so it went back up to 30mg. By April I had moved hypothyroid (?) TSH was0.98, T4 was 15.8 and T3 was 4.6 - I also developed mild TED then, which I still have. After that I stabilized on alternating 5 and 10mg of carbimazole but levels changed again when I went to 5mg so I am back alternating 5 and 10 again but feeling ok.
Is mine a hopeless case and should I opt for more radical treatment or do you think I should push to stay on carbimazole for longer? Will they do RAI or partial thyroidectomy when I still have active TED?
Can I also say your information has been a lifeline for me - I am learning so much. GP’s have been pretty hopeless!