Help please FT4 almost below range - feeling tired - hyperthyroid no more?

[El4545]

Hello

Please could you help.

I was diagnosed April 2018 this year with FT4 100 (12-22) and tsh 0.03 (0.27 4.20) - was taking 15 mg carbimazole pd

27 July 2018 FT4 23.4 (12-22) and tsh 0.01 (0.27 4.20) t3 7.6 (.. -6.8)- was taking 10mg carbimazole pd

2 August 2018 FT4 23.4 (12-22) and tsh 0.01 (0.27 4.20) - was taking 10mg carbimazole pd

8 August 2018 FT4 15.7 (12-22) and tsh 0.03 (0.27 4.20) T3 6.1 (..-6.8)-was taking 10mg carbimazole pd

3 September FT4 12.4 (12-22) and tsh 0.01 (0.27 4.20) -was taking 10mg carbimazole pd

I’m feeling tired I’m going to reduce to 5mg Carbimazole after a day break. My NHS endo appointment not til 8 October. Any thoughts please?

I’m not feeling well.

Thank you

[Valarian]

Presumably the endo gets a copy of the tests ? Phone their secretary and tell them how you feel, they may recommend reducing the dose.

You need to be careful reducing it without guidance - if this is Graves', your thyroid needs to be kept under control for you to have the best chance of achieving remission. Also, there is a lot of overlap between symptoms - I've felt tired when I'm over, withon range and slightly under !

Speaking of Graves', have you been told whether this is the cause of your hyperactive thyroid, and if so, did they conform this with antibody tests (TRAb or TSI) ?

[El4545 in reply to Valarian]

Thanks for your reply Valarian. I have to send the endo the results. I got the last set done privately.

Yes I was tested with an antibody test and was confirmed to have Graves.

I will give the endo Secretary a call. I just thought as I am so close to bottom of FT4 range that soon I will dip below. I read on Elaine Moore’s site that I need the lowest dose possible to keep me at upper end of range. But I’m not an endo and not really sure what I’m talkign about.

I just feel anxious, irritable and tired. Maybe it’s not connected.

When you say if I have Graves I have to make sure my thyroid is kept under control - do you mean if I reduce the carbi from 10mg to 5mg and it shoots back up this could increase remission chances?

Many thanks for your input!

El

[Valarian in reply to El4545]

Re remission, I meant that you don’t want your thyroid levels shooting up over range again.

Was Elaine Moore talking specifically about hypers with Graves’ on Carbimazole or might she have been referring to people who are hypo on levothyroxine ?

To be honest, for many of us with Graves’, just staying within range while trying to balance the effect of Carbimazole and the impact of the disease can be enough of a challenge, without worrying about the niceties of whereabouts in the range.

[El4545 in reply to Valarian]

I think Elaine was talking about graves and Carbi but must stress I’m not 100% Sure.

Thank you for putting things into perspective for me. It has really helped. I will speak to the endo and my GP and remain on my current dosage until docs says otherwise.

[El4545 in reply to Valarian]

I spoke to the endo after many calls I got through and she said I could reduce to 5mg. Thanks everyone

[silverfox7]

I've no experience with this but I do know someone who has and once talked to me about how she was being treated. She was always told to ring up if things didn't feel right or worried about anything as things can change more quickly than being under active. So please ring up and ask for advice as you don't know what to do and I think at least the Endo to should speak to you on the phone and give guidance.

[El4545 in reply to silverfox7]

Thank you Silverfox yes I feel it’s a dramatic change. I tried before to call the endo and left messages and no-one called me back. I did that a few months ago as I had no appetite whatsoever as a hyperthyroid patient that was very concerning. I’m trying again today.

[ling]

Hi El4545, how are you doing?