Hi everyone ♥️
Can someone help me on these latest results I received today.. Also got my bone scan results gp says I have ostiopeania... 🤷♀️
Blood results... Note no TSH done...
T3.. 8.3...pmol/L..ranges 3.10...6.80..pmol/L..
T4..17.5..pmol/L...ranges.. 11.00...22.00 pmol/L..
Platelet count.. 432 g/L...10*9/L..ranges.. 150.00..400.0010*9/L...dont know what this means... It had a... ! Beside it... Usually means see doctor... 🤷♀️ He never mentioned it... 😔
Was test done as early as possible in morning before eating or drinking anything other than water
Last dose of Levothyroxine 24 hours prior to blood test. (taking delayed dose immediately after blood draw).
when also on T3, make sure to take last third or quarter of daily dose 8-12 hours prior to test, even if this means adjusting time or splitting of dose day before test
Is this how you do your tests?
What vitamin supplements are you currently taking?
Hi slowdragon ♥️
Thanks for the reply yes done everything you said I split dose stopped meds before test and had early morning test with water.... I'm on 800 iu vit D... I'm waiting on a short synacthen test as I mentioned cortisol was low.. I've not taken any T3 for the last 2 weeks as endo weened me off it.. This is the worst I've felt since my TT... I'm having bad hyper symptoms had to go to bed this afternoon as I felt so sick I'm not sleeping at night at all due to server sweating, I'm jittery feels like I'm sitting on top of a washing machine on spin cycle turning over or getting up my heart rate goes right up feeling sick now like I want to vomet.. I know it's overmedication but gp wants me to continue on 125mg T4... Am I right in thinking T4 has a longer life in the body than T3? My endo said T3 is not to good as it has peeks n troughs.. 🤷♀️ But T4 does not.. I think the more I take T4 at the present dose the worse I'm going to feel.. Last doctor thought I could be T4 sensitive what ever that means!! With everything that going on with me.. Cortisol, PTH being raised and last calcium being 2. 5...mmol/L..ranges.. 2.10..2.60...mmol/L
Serum adjusted calcium con.. 2.44..mmol/L..ranges.. 2.10..2.60..mmol/ L.. I feel so rotten and just getting up to go on the loo is exhausting... I'm also very out of breath but I was like this when I was hyperthyroid 😢
More likely Levothyroxine isn’t converting and just building up to high levels with rock bottom Ft3 and dire vitamin levels
High Ft4 makes you feel hyper
Low Ft3 leads to lack of energy and low vitamins
Night sweats can be low B12
Obviously you need FULL thyroid testing. Ideally 6 weeks after stopping T3.
You need B12, folate, ferritin and vitamin D tested
If you can get GP to test vitamins then cheapest option for just TSH, FT4 and FT3
£29 (via NHS private service ) and 10% off if go on thyroid uk for code
thyroiduk.org/getting-a-dia...
monitormyhealth.org.uk/thyr...
Hi slowdragon ❤️
What should I be looking for with my blood tests for poor conversion?
My T3.. Was 8.3.....my T4 was 17.5..no TSH.. So I'm now on T4 ( teva lactose free) at 125mg splitting the dose morning /night... I've been off T3 for over 2 weeks now... So will have to wait another 4 weeks for blood test... Don't think I can cope on the 125mg levoroxine I'm so hyper, in bed now just going to make a cuppa or going to the loo exhausts me I'm outa breath to, like I've run a marathon thought all these symptoms would be behind me after total TT... 😢😢😢
My endo said T3 is not to good as it has peeks n troughs
This endo is clearly anti T3
Yes T3 has short life, that’s why many people prefer taking 3 small doses T3 per day when also taking levothyroxine
Many, many patients can’t convert on just levothyroxine, typically would need 75mcg-125mcg levothyroxine per day plus 15mcg or 20mcg T3 per day, usually as 2 or 3 divided doses
some patients can’t tolerate any levothyroxine. Then would likely need 50-60mcg T3 per day, usually as 3 smaller split doses. But some people prefer to take whole daily dose T3 at once.
Regardless of what thyroid hormones, we always need good vitamin levels
Thanks for that slowdragon ❤️
Can I ask you, why do i display hyper symptoms could lack of vitamins and minerals play a part, or could I have the graves antibodies in my system,, I've never felt hypo at all... I will tell you I'm only going along with this endos advice for now, I'll be intreaged to see my blood results in 4 weeks time L will go from their but to be on this amount of T4 (125mg) I will be in bed back to like having my thyroid in my neck.. 😩😩😩
Hi slowdragon
Also fgot to say... I told endo I was splitting my T3 dose in 2.. 10mg in the morning 10mg at night, no T4 at this point...... Unfortunately I still had hyper symptoms 🤷♀️ even on that dose... But really bad now on 125mg T4.... No T3 for over 2 weeks now..... Also starting to feel nauseated (sicky feeling) yesterday still have it now.. 😢
Hi Lora7again ❤️thanks for that info, my gp whom I really don't like, unfortunately that was the only app the doctors had said I was in the orange zone, ostiopeania(spelling could be wrong) he said the next step would be ostioporosis, my new endo went through my records and noted intermittent rise in calcium levels which then returned to normal this is from 2003 to 2020,he was slightly bemused why my calcium was doing this. I had 2 blood tests which showed PTH.. At 8.1 then the last was 9.5 I think anyway it was over 9..with a calcium at 2.63 just over then one at 2.60.. My calcium is now normal at 2.50..range..2.10..2.60...with.. Serum adjusted calcium conc at 2.44..range.2.10..2.60..
He didn't seem bothered that I had ostiopeania, or how I developed it.. I've struggled with my thyroid meds since my total TT in 2019... T4 when leaving hospital was 175mg...but my surgeon noticed hyper symptoms on my app with him to be honest I thought my thyroid was still in my neck... Because the symptoms were really bad, he reduced my dose to 150mg..this went on until I was eventually on 50gm I started with bad cramping and diarrhea I found out the T4 contained lactose, I'm intolerant to lactose so my endo took me of them and put me on T3 teva lactose free.. Its strange even on 20mg of T3 I felt slightly hyper, I've never felt hypo🤷♀️ would this be normal for someone with no thyroid, he put me on 125mg of T4 with 20mg T3 asking me to reduce the T3 then discontinue it, I have, but now I have very bad hyper symptoms I'm sure 125mg is to high a dose for me I'm back to bad tremors, heart racing, sweating bad, restless leg, pins and needles in hands and legs utter exhaustion going to put the kettle on is like running a marathon, this is occurring even when I'm splitting the dose.. Morning/night.. I can't go on with this amount 125mg..ive taken 20 tablets of 100mg and the same of 25mg they are lactose free, teva... Gp wants me to continue on 125mg T4 but to be honest that will require me to be in bed to do this as I can't cope with the hyper symptoms 😔😔😔
Pins and needles often low B12
Restless legs low magnesium
What other vitamin supplements are you currently taking, apart from tiny dose vitamin D
When T3 is withdrawn vitamin levels often drop dramatically
We can’t utilise levothyroxine if Vitamins are low
Hi slowdragon thanks for your reply ❤️ only on vit D at 800iu..one daily all other vit minerals were in range apart from either foliate or fertine but gp said its OK.. 🤷♀️ I'm sending an e mail to my new endo on Monday concerning my vit and minerals... He seems more intent on getting me sorted with the low cortisol, which I'm greatful for,. And I will mention my latest thyroid blood test.
Thanks again♥️♥️
Low cortisol obviously extremely important
Hi slowdragon ❤️
I'm having a really bad time on T4 at 125mg I've been on this for over 20 days now reduced T3 as directed by new endo, not been on T3 for at least 10 days my symptoms are unbelievable all very hyper, tremor, sweating profusely, heart rate high, not sleeping all the awful symptoms of hyperthyroidism. I had my app with the gp on frid he noticed my tremor and sweating, total exhaustion, he checked my heart said it was OK never did blood pressure or temperature,, said I've to stay on 125mg T4 for another 4 weeks gezz I dont think I can stand another day😢 I'm afraid I had to miss a dose on Sunday due to how I was feeling as I said all horrid hyper symptoms have returned, I can say in 24 hours I started to feel a bit better so I skipped another dose and felt like I was returning to normal a bit, I've now gone back on it and again all hyper symptoms are returning ( I'm splitting the dose half 100 mg and half 25mg...) I take one dose in the morning and one at night.. Making 125mg in all, I feel this dose is far to much for me as I'm going hyper, and I know what that's like I had hyperthyroidism symptoms for nearly two years before eventually being diagnosed then had thyroid crisis so I know when I'm hyper. This is making me feel really ill and I'm back to being bedridden as I was before, I've never been hypo I've always had hyper symptoms before surgery and after, I'm getting so sick of this I feel like just coming off the T4 to see what happens, start over again, because I really don't know what to do, I'm building up my vitamin D with my prescription my gp says all vitamins and minerals are OK within range!! You did mentioned in your last reply to me about cortisol! Do you think it could be a factor I've got low cortisol just waiting on the short synacthen test to be done.. I can't go on taking 125mg it's to much,, god I thought getting my toxic thyroid removed would eliminate the hyper symptoms 😭😭😭
Can you contact Endo to explain how unwell you are
It's chicken and egg .....being on too low a dose of levothyroxine badly affects cortisol levels and cortisol levels affect how we can use thyroid hormones
Every time you miss a dose of levothyroxine it can mess cortisol levels more
The only way I could tolerate high enough dose of levothyroxine (125mcg,) was to also be prescribed propranolol alongside (similar to when someone is hyperthyroid)
Were you ever prescribed propranolol when hyperthyroid?
Hi slowdragon
Yes I was given propranolol but my heart rate was 146 bpm.. At that Time I was in full hyperthyroidism.. Really its not so much the heart beating fast it's the tremors, sweating profusely, changes you life so much I'm constantly wet going on the loo a lot not sleeping 😠 and this weekend I've noticed bad stomach pain and inflammation in the intestines my stomach has been swollen and hurts to touch.. I had all these symptoms when I was on T4 after my TT... Thought it was lactose intolerant 🤷♀️ I've now been on this T4 for 21 days and it's now very much in my system and I know it's the cause of all the above symptoms because I was no where near as bad on T3.. Certainly ad no intestinal or stomach problems on it slight sweating, slight tremors heart beat was slightly raised but I don't think 20mg was enough I think I should have increased but gp and endo left me on 20mg..then as I said new endo has weened me off it until I'm now on T4 only... I've reduced the dose this last few days and feel much better especially the intestinal /stomach problems, everything as lowerd, not sweating as much, tremor easing, heart rate easing, I've even slept thank god!!!! As a hyperthyroidism suffer for over 3 years before diagnosis I know the symptoms and I'm sure it's the T4 meds making me this way... Other gp said I could be sensitive to T4... Beats me why they give T4 only to people with no thiyroid!! And everyone is diffrent and react differently to medication.. I have sent a e mail to my endo telling him of my symptoms ect and informing him of me decreasing the dose.. See what comes back
Thanks again slowdragon ♥️♥️
High Ft4 and low Ft3 cause body to try to compensate for lack of low by running on adrenaline
Propranolol will lower adrenaline
Thanks slowDragon ♥️
I'm so confused as to why when I go on T4 I have such bad hyper symptoms. My last lot on discharge from hospital I was on 175mg calculated by body weight.. That was to high and endo/surgeon noticed as did I.. So they droped my dose until I was on 50mg and still had hyper symptoms and all the bowles and stomach problems my bloods never showed any signs of hypo and never have.. Even on 20mg of T3.. I was on T3 for over 5 or 6 months of sheer hell.. Until I was taken off them... Then my symptoms diminished especially the bowles and stomach problems for which I was greatful as that pain is bad I thought I was going to need to go to A&E at the weekend I was so bad... I've decreased the amount now and as I say feel better in the bowles and stomach the inflammation has gone down.. What is lack of low slowdragon? If I feel so hyper on 125gm of T4 what's going on.. my T3 has gone up to.. My TSH from last test was 1.8 I think.. Staying on 125gm T4 is madness as I'm so ill... I'm really thinking of coming of it for 4 weeks and have a re- test of bloods after this next bloods in 4 weeks time... To see what happens to my T3, T4, TSH. Go from their I know this doesn't sound safe but I'm desperate.. I'm trying the half dose of T4 for the next 4 weeks see how I cope on it... Also you mentioned I might not be converting the T4 and it could be building up in my system could this account for the way I feel...
Thanks slowDragon ❤️❤️❤️
Until you remain on unchanging dose thyroid hormones for 6-8 weeks minimum you are unlikely to make progress
If this is intolerable- taking propranolol alongside may help
Hi again slowdragon ♥️
Only gripe with propranolol was it never did anything for the server sweating or tremors going to the loo, no sleep, ect so I don't think it will be any good for me.. I've looked on sites for over medication of thyroid drugs and that's what I have overmedicated symptoms.. Either I'm not converting it or I'm sensetive to it.. Or as you say cortisol as a part to play.. 😔
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