Hi does anyone have experience of taking Natural sources Raw thyroid?

[Shredder]

Hi again all. As someone who has found Natural desicated thyroid to be the best thyroid for me I just wondered if anyone had tried Natural Sources Raw thyroid. Unfortunately most NDT's aren't working at present and I have tried synthetic T4/T3 combo but found the synthetic t3 too strong even in small doses. I appear to have a rather strange body. I just wondered about the raw thyroid? I tried Metavive which I know is a supplement but it was rubbish for me and so wondered how others had faired and how much I would need to take?

[Hypopotamus]

My body must also be strange then. My thoughts on NDT are that once Armour worked perfectly for me, so did ERFA. Then they were changed, and they no longer worked for me. I tried Thyroid-S but that didn't work for me, although I know that many swear by it.

Next I tried Thiroid, and that was OK (although it ddidn't work for others), but I found TR to be better still and was happy on it until it was mysteriously withdrawn. Now I am on TRU that looks like being in short supply due to the high demand

I am left wondering what people did from the end of the nineteenth century until Armour was changed in 2007, and more specifically before the 1980s when man-made thyroid medication was available. Can't we go back to the arrangement of those days, where NDT was readily available from local pharmacies? Thse days it is a near full-time job (and constant worry) to source medication that works for us, when that medication was easily available in the past.

I have it written in my medical records that I am resistant to thyroxine. That should make it mandatory for the NHS to supply me with an alternative, but of course they say that they don't have to so won't. Ruling out the reason that they simply don't like me, and want me to suffer, I can only assume that cost is the reason. And there is no need for it to be because neither liothyronine nor NDT should cost that much to produce.

I'm about to write to my endo requesting that he get together with other members of his profession, and sort this ridiculous situation out. Nobody takes notice of patients, regardless of how many of us sign petitions. I can only suggest that everybody who remains unwell on thyroxine does the same. I am actually going to ask my endo if his job and salary are more important than his patients' health.

[Turner50 in reply to Hypopotamus]

I also took Armour and then ERFA, then Nature-Throid, which was recalled recently, a batch I had been taking at least as far back as May 4th. I even muscle-tested that it's not good for me. During the NT shortage, I tried NP Thyroid and didn't do well on it. I've now switched to EcoThyro, which is from cows instead of pigs, in addition to 50 mcg of Synthroid. I have to wait a few weeks to retest thyroid levels, but they don't always seem to reflect how well the cells are absorbing. I think I'm hypo again, but have some intestinal problems going on that can contribute to fatigue also, being C. diff and suspected SIBO, which I just read can be caused by poor motility of the intestines, which can be caused by low thyroid. Point being that so many things can go wrong if thyroid isn't right.

[Shredder in reply to Turner50]

Oh yes I agree there. I havevterrible motility issues and brain fog.

[Shredder in reply to Hypopotamus]

My endo, to be fair was fantastic. He originally put me on Armour and possibly saved my life but unfortunately I live at an address that comes under another healthboard. Unfortunately my hospital stopped pfescribing to patients outside the area despite my endo virtually begging my own healthboard to prescribe Armour.

[Wired123 in reply to Hypopotamus]

I think you will have more luck approaching one of the patient groups and then engaging with some MPs. Can we find out if any MPs/Lords have thyroid disease (or their spouse/kids/siblings). Should be at least 100-200 MPs and Lords easily that can band together and make this happen.

[healthyKt in reply to Wired123]

Sounds great. Perhaps a poll/survey then take data and ask to MPs? Also for better testing?

[Wired123 in reply to healthyKt]

Great idea!

We need to create another thread where we can pool all the knowledge in one place and then write a coordinated case.

Ideally we need an APPG which a lot of other diseases have. This gives us a regular forum for MPs/Lords, doctors and patient groups/charities to interact. That’s the only way to start putting pressure on parliament to make things happen.

We need to band together and get this done, just need someone to take the lead.

[dtate2016]

Yes, I too was doing quite well on Armour and NatureThroid for over 20 years - then it stopped working somewhere in 2018 / 2019. I was taken quite by surprise, TSH rose to 48.

Of course the Drs were thrilled to put me back on T4 only - which likewise didn’t work. It took TSH down to 20, but somehow, I cannot take enough T4 to finish the job. Somewhere around 50 mcg or above, BP starts going through the roof, heart palpitations, ears ringing like crazy - I have tried for over a year to gradually increase, but it’s just not working.

Enter Raw Dessicated Thyroid. Tried taking it along with T4 (50 mcg), it worked great for about a month. Now, I can’t take the RDT at all - chest pains, heart palpitations, etc. My body is not responding well to any of the Thyroid medications / treatments. I am watching the diet, taking vitamins, herbs, minerals. Looking into estrogen dominance, phage therapy, gut balance, looking under every rock.

Recently read that T4 (Only) could actually inhibit liver function / conversion of T4 into T3. There are people here on T3 only - and they do great! If I go on T3 only, I will be doing it without a Dr. The one I have now insists T3 only causes heart problems. Scary place.

And yet, did I mention? T4 ONLY IS NOT WORKING. I do have Hashimotos and MTHFR polymorphism. Main focus right now is to reduce inflammation at every opportunity. (Do I have to give up alcohol altogether?!). It seems so. (Alcohol is a source of inflammation and estrogen).

Please share with me what you find out about RDT only treatment. There are plenty of fairly inexpensive sources here in the US, and without prescription. Perhaps RDT and T3 (synthetic) cannot be compared under the same light?

Perhaps more questions here than answers. Someone with more RDT experience will surely answer.

[Shredder in reply to dtate2016]

I tried Metavive but it didn't work at all for me. I have started go add the other raw thyroid tablet to my levo and the remaining Thiroid NDT I have but so far, no improvement.

[reliablerebel in reply to Shredder]

Hi there, just wondering what dosage of thiroyd were you on? And how many metavive did you switch to? I have successfully managed to switch from thiroyd to metavive 11 (Ithink!!)

[AnnaKie]

Hi, I tried Raw thyroid by natural Resources recently. Unfortunately, it didn't suit me. It has other glandular tissues such as spleen, adrenal etc. and it was too much. I can't take anything for adrenals I get spitting headaches, shakes and other adverse effects. And because I was on more than4 grains NDT before I would need to take 5 or more tablets of Raw which would mean more adrenal and other tissues. Some ppl find it great, I'd say those with cortisol problems or that are already taking adrenal support.