Prescription for NDT

[setay_k]

Hi,

After 10 years of back and forth with NHS GPs and never feeling well, I've finally gone to a private recommended Dr and have been given a prescription for NDT. My T3 levels are on the low side, so I'm hoping that a twice daily dose of NDT will help.

I wanted to see what your experiences of switching on to NDT were, how much £ it's costing you per month and if you have any way of sourcing NDT cheaper online then please do DM me.

I'm slightly concerned about the cost long term - but can you put a price on health and feeling well?

Many thanks for your advice in advance,

Kate

[SeasideSusie Remembering]

setay_k

You can compare prices of having your prescription filled in the UK by ringing round the pharmacies listed on ThyroidUK's main website here:

thyroiduk.org/help-support/...

[setay_k in reply to SeasideSusie]

Thanks SeasideSusie . Looks like I can only go via a certain few on that list through the Dr I've seen. Will ring around today.

[HashiFedUp]

I went private and was given NDT. pretty much well all the time now as long as i get 8 hours of sleep regularly! I actually have a combo of NDT and NHS levo. Plus vit D supplement.

NDT works out about £20-25 per month when bought in bulk and worth every penny. Your endo should be able to recommend a pharmacist with a good supply which is not too expensive.

[setay_k in reply to HashiFedUp]

Thanks HashiFedUp - that's much cheaper than I was expecting, so actually seems ok!

[AnnaSo]

NDT changed my life. Wish I discovered it sooner but still glad I got my life back at the age of 31 after suffering on Levo for 13 years! Hope it works for you too!

[setay_k in reply to AnnaSo]

AnnaSo that's really reassuring to hear. I'm hoping for a similar outcome. Fingers crossed.

[lizhut]

May I ask what brand you're on. I am having issues with Nature-throid and am giving a few others a go. Initially - like many others, Nature-throid was excellent but several NDTs have been re-formulated or have been problematic. Overall, though, I want to continue on NDT as I felt awful on Levo.

[shaws in reply to lizhut]

I do wish they would not reformulate thyroid hormones as lots of us can get new unpleasant ymptoms

[Amandaj51]

Try metavive. Info on Dr Myhill’s website and can buy from her shop direct

[Miffie]

I self medicate with NDT as this is what I was origprescribec by the nhs when diagnosed in 1960. I now take 4 .5 a day to get anywhere near a normal FT3. Still only at 50%. Not increasing just yet as my GP asked me to cut down for a retest in 3 months from last test in August. Will get her next test done then increase.

I was very unwell when NHS changes me to levo. Even on 500mcg I had T3 at 12% ish. I pay quite a bit but at age 69 it’s not bothering me.

[shaws in reply to Miffie]

What do you think of the 'experts' withdrawing NDT without notice even though it was first prescribed since 1892 and was the first to save hypo patients' lives. This was done through 'misinformation' to enable it to be withdrawn.

What quality of people would go to the extent of misinformation in order to remove a popular product from being prescribed.

drlowe.com/thyroidscience/C...

Levo made me feel far worse than when I was first diagnosed. I couldn't believe a tablet supposed to help relieve symptoms didn't do so for every single person who swallowed it.

[Miffie in reply to shaws]

I was and remain totally disgusted by the way we were and continue to be treated. I dread to think how poor my quality of life would now be if I was not in a position to take matters into my own hands.

When I was changed onto levo the doctor told me it was exactly the same just a new name. He clearly thought I had no brain.

[shaws in reply to Miffie]

I think we would think more of the professionals if they told us they didn't know how to treat patients who had problems with their thyroid gland. Therefore we could please ourselves with help advice from others on this forum.

If people don't have access to online help or anyone other than the GPs they may take a long time to resolve clinical symptoms, even worse - will not be able to resolve them.

[shaws in reply to Miffie]

It was your GP who was low on T3 due to his comment. My GP told me that T3 converted to T4!!! as he said my T3 was too high and T4 too low. I said but I only take T3 I don't take T4 - he said but T3 converts to T4 - NO doctor that's incorrect I responded - wearily.

[Boon79]

Which private endo do you see? Thanks

[helvella in reply to Boon79]

Please DO NOT post any names of doctors on the thread.

Any replies to this question to be via Private Message only.