Feeling better

[selftreatendo]

After taking B12 for a month now, all my night symptoms have gone away.

I took 1000mcg and the symptoms have simply vanished.

I just have a little fatigue and I have put on a lot of weight over the last ten years. I used to be 14 stone but now I am 20!

I just need to grab hold of some T4 and T3 and I will be cured.

Thanks to this site and one particular doctor who led me the right way to believe that ME/CFS is a non existent disease and is just a matter of getting the right hormones into your body.

[selftreatendo]

I got sent this by the ME Association when I told them my B12 level of 342 have me neurological symptoms. ruh.nhs.uk/For_Clinicians/d...

[selftreatendo in reply to selftreatendo]

The ME Association also sent me this about B12 supplementation which suggests B12 is a marketing strategy when most don't require it as we have adequate reserves in our liver.

sciencebasedmedicine.org/vi...

[selftreatendo in reply to selftreatendo]

but then the ME Association Dr contradicts himself somewhat by this

3 At present, there is no sound scientific evidence of vitamin B12 deficiency in ME/CFS and no evidence from a good quality clinical trial to show that vitamin B12 is an effective form of treatment for ME/CFS. However, Regland et al from Sweden have reported that in a survey of 38 ME/CFS patients who had been receiving vitamin B12 injections in combination with folic acid at least once a week for six months, 15 reported a good response and 23 reported a mild response. Abstract: ncbi.nlm.nih.gov/pubmed/259...

[selftreatendo in reply to selftreatendo]

This is the same scientific paper in more detail which recommends both B12, Folate and thyroid meds for ME/CFS subset of responders.

journals.plos.org/plosone/a...

I faxed all this to my GP ready for the morning. FIngers crossed

[Gophe]

Congrats, selftretendo, and thanks for sharing. What B12 did you take? I've had reflux for several years now and have had no luck resolving so far. I'm currently upping my B12 to see if that helps. But I'm hesitant to go too high with it, since my B12 levels showed up fine in my recent blood tests (although I only stopped my supplement a few days before the test).

I already take a B-complex supplement (MegaFood) and have added about 500mcg of Solgar's sublinguinal B12 with B-Complex (which has B12 as cyanocobalamin). But not wanting to take more of the other parts of the complex, I've just ordered the BioCare methyl B12 to try instead.

[mstp in reply to Gophe]

I found my reflux stopped when I began taking nutrigest. Sometimes hypo people experience gut problems which can lead to all sorts of problems because they aren't absorbing all the nutrients in food.

[Gophe in reply to mstp]

Interesting. Could you tell me more about nutrigest? I just googled it, and I'm only seeing something for cats/dogs.

[mstp in reply to Gophe]

Dr Peatfield recommended it to me as an aid to my iffy digestive system. I used to take it before every meal but as my health improved I cut down to once before breakfast every day. It is made by Nutri. Their bottles are white plastic with a light blue and green label. When I keyed it in lots of photos of it came up as well as info about it on Google.

[Gophe in reply to mstp]

Thanks! I've found it.

[Liyaelize in reply to mstp]

Please could you give a link to Nutrigest. I only found for pets. I'm in the USA. Thanks

[Gophe in reply to Liyaelize]

It comes up when I google 'Nutri gest' as separate words. Here's one link, just to show you the image -- I have no idea if this particular site is trustworthy or not:

nutriadvanced.co.uk/nutrige...

[Gophe in reply to mstp]

mstp, just to confirm: How long had you had the reflux before you started taking Nutri? How long did it take for symptoms to go away? And are you now completely reflux-free? (I took Digest Gold for several months, which seems quite similiar, although without the Betaine HCL, and it didn't help at all, so I'm not sure if this is worth trying or not.)

[Liyaelize in reply to Gophe]

Thanks so much. I found it but a few of the ingredients are not so good for me. Thanks for sharing and wish you good health.

[Gophe in reply to Liyaelize]

@Liyaelize: Likewise -- I'm not sure I'm up for the HCL in this one. By the way, I stumbled on this recently, which looks interesting: youtube.com/watch?v=-J9Jqmo...(Not working as expected?).

The 'bitters' mixture she mentions is: dandelion root, baical skullcap, gentian root, and Oregon grape root. Seems like it'd also be good to increase stomach mucous at the same time for protection (using a root that stimulates mucous procution like marshmallow root or slippery elm).

[Liyaelize in reply to Gophe]

Thanks so much. I was surprised to see Ray Peat suggesting that product. It contains a number of not good ingredients in

[mstp in reply to Gophe]

Hi I began taking it after about 18 months of general ill health which began because my body stopped converting the thyroxin I was taking. I had many symptoms including hair loss, brain fog, poor memory, extreme tiredness and severe indigestion. (I had many more but I'm pleased to say I can't recall them now.) I was very low in B12 and ferritin at the time and it was only my visit to Dr Peatfield and this website that put me back on the road to recovery. I think it went away pretty quickly actually but I did take a course of tablets as well that he recommended. Sorry I can't recall what they were now.

[Midnight_Voice]

The symptoms of ME/CFS are very similar to the milder symptoms of B12 deficiency.

And it is easy to measure B12 levels objectively, and to remedy the situation somewhat; for vegans, whose diet lacks B12, with oral supplements, and for those with a normal diet but adsorption problems in the stomach or the gut, with regular injections.

Though for those whose B12 deficiency has progressed to neuropathic symptoms (tingling and/or loss of sensation in the hands or feet, say) the best that can be done is to stop these getting worse.

But while having excess B12 in the body, from oral or from shots, is harmless, it is also ineffective, conferring no further medical benefits.

Any study that shows an improvement for ME/CFS sufferers from taking B12 needs to consider if what they had was misdiagnosed B12d, not ME/CFS at all, or if they actually had both, and the B12d now being treated Has improved things for them somewhat.

[jconnor123]

what b12 blood levels are considered healthy or normal ?

[Spangle15]

Can I ask the name of the doctor you mention please.