🌈Tips for Questions🌈: Hi All. 👋 I have tried... - Thyroid UK

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🌈Tips for Questions🌈

Aslangal profile image
Aslangal
•4 Replies

Hi All. 👋

I have tried several times now to up load a table of my results but the app won’t let me and just crashes out each time.

My last Medichecks results were:

TSH 1.76 (range 0.27-4.2)

FT4 17.800 (12-22 so 58% through range)

FT3 3.97 (3.1-6.8 so 23.51% through range)

TPOab 41.8 <34

TgAB 852.00 (<115)

Ferritin 138 (13-150)

Vit D 63.8

B12 Active 54.800 (>37.5)

Folate Serum 4.03 (>3.89)

CRP HS 3.76 (<5)

As I typed up the table for the GP, I just noticed that the Endo appt in Jan 2020 quoted my TSH & T4 Reading from August 2019 and based on that - he categorically stated (😂) that I did not have Hashimoto’s. I had given the Endo in December a hard copy of my Medichecks thyroid panel which I had done in October. In January, I gave this Endo another copy to which he replied ‘Oh! You DO have Hashimoto’s!’ 🙄

I take one 1000mcgs B12 lozenges daily

I take 3800iu of Vit D3 (800iu tablet and 3000iu In spray)

200ug Selenium

1 x B-100 Complex

1500mg Omega 3 Fish Oil

150mg MagAbsorb Citrate

1 x Probiotic

22mg Zinc Picolinate

100mcg Natural Vit K2 with MK-7

GP advised alternating 125mcg/150mcgs Levo since I posted last.

With the amount of Vit D I take plus a healthy diet - my Vit D has dropped from 74 in January to 63.8 here.

Same for B12 - with the supplements my B12 is still lower end of range.

Could you give me some questions to ask the Endocrinologist when they call?

Should I get B12 injections?

Thanks in advance 😀

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Aslangal
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SlowDragon profile image
SlowDragonAdministrator

So was levothyroxine dose increased up from 125mcg daily?

Vitamin D

It’s trial and error what dose we need, with hashimoto’s we frequently need higher dose than average

Suggest you try increase to 4000-5000iu daily

Are you supplementing magnesium and vitamin K2 mk7?

betterbones.com/bone-nutrit...

medicalnewstoday.com/articl...

livescience.com/61866-magne...

sciencedaily.com/releases/2...

Vitamin K2 mk7

betterbones.com/bone-nutrit...

healthline.com/nutrition/vi...

As you have Hashimoto’s are you on strictly gluten free diet?

Poor gut function can lead leaky gut (literally holes in gut wall) this can cause food intolerances. Most common by far is gluten. Dairy is second most common.

According to Izabella Wentz the Thyroid Pharmacist approx 5% with Hashimoto's are coeliac, but over 80% find gluten free diet helps, sometimes significantly. Either due to direct gluten intolerance (no test available) or due to leaky gut and gluten causing molecular mimicry (see Amy Myers link)

Changing to a strictly gluten free diet may help reduce symptoms, help gut heal and slowly lower TPO antibodies

While still eating high gluten diet ask GP for coeliac blood test first or buy test online for under £20, just to rule it out first

Assuming test is negative you can immediately go on strictly gluten free diet

(If test is positive you will need to remain on high gluten diet until endoscopy, maximum 6 weeks wait officially)

Trying gluten free diet for 3-6 months. If no noticeable improvement then reintroduce gluten and see if symptoms get worse

chriskresser.com/the-gluten...

amymyersmd.com/2018/04/3-re...

thyroidpharmacist.com/artic...

drknews.com/changing-your-d...

Non Coeliac Gluten sensitivity (NCGS) and autoimmune disease

ncbi.nlm.nih.gov/pubmed/296...

The predominance of Hashimoto thyroiditis represents an interesting finding, since it has been indirectly confirmed by an Italian study, showing that autoimmune thyroid disease is a risk factor for the evolution towards NCGS in a group of patients with minimal duodenal inflammation. On these bases, an autoimmune stigma in NCGS is strongly supported

ncbi.nlm.nih.gov/pubmed/300...

The obtained results suggest that the gluten-free diet may bring clinical benefits to women with autoimmune thyroid disease

nuclmed.gr/wp/wp-content/up...

In summary, whereas it is not yet clear whether a gluten free diet can prevent autoimmune diseases, it is worth mentioning that HT patients with or without CD benefit from a diet low in gluten as far as the progression and the potential disease complications are concerned

restartmed.com/hashimotos-g...

Despite the fact that 5-10% of patients have Celiac disease, in my experience and in the experience of many other physicians, at least 80% + of patients with Hashimoto's who go gluten-free notice a reduction in their symptoms almost immediately.

Aslangal profile image
Aslangal in reply to SlowDragon

Thanks yes GP wanted me to take 125mcgs/150mcgs on alternative days which I have been doing for a week. I do not have coeliac - Test was negative. I know about the gluten connection (although both Endocrinologists poo poo’d this idea and were quite ambivalent about going GF and it’s effects on thyroid disease 🙄). Bought a stockpile of GF stuff from M&S yesterday. The downside of GF I have noticed is there is so much rubbish in there to make it taste bearable! Can’t win.

My GP was shocked at my Vit D drop given the 3800iu I am taking. From what I’ve researched on Hashimoto’s - Vit D & B12 are common deficiencies as the body attacks them?

So should I ask about B12 injections?

SlowDragon profile image
SlowDragonAdministrator in reply to Aslangal

Best GF bread ....B free brown seeded. Warburtons brown sourdough. Ok toasted (in separate GF toaster)

Waitrose thins make nice sarnies

With any autoimmune disease many people have genetic issues with how we make vitamin D.

ncbi.nlm.nih.gov/pubmed/286...

Vitamin D deficiency is frequent in Hashimoto's thyroiditis and treatment of patients with this condition with Vitamin D may slow down the course of development of hypothyroidism and also decrease cardiovascular risks in these patients. Vitamin D measurement and replacement may be critical in these patients.

endocrine-abstracts.org/ea/...

Evidence of a link between increased level of antithyroid antibodies in hypothyroid patients with HT and 25OHD3 deficiency may suggest that this group is particularly prone to the vitamin D deficiency and can benefit from its alignment.

Aslangal profile image
Aslangal

Yes to the K2MK7 ... it’s in the list above 100 mcg

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