Best thing for us to do is to keep complaining to Drs/Endos/etc to carry out tests we know we need! We add FT3 TPO etc on our blood forms!

[Thyb]

My GP rang me earlier regarding messages I sent online. He said come for face to face appointment tomorrow to go through Blue Horizon blood results and to see the Nurse for a B12 injection...Just shocked because they don't know my B12 results yet. I just asked them for the best B supplements and extra InvitaD3 ampoules.

My B12 from Blue Horizon:- Mine 266 Deficient <145 WITH B12 AT 266 WOULD I NEED A B12 INJECTION (IT'S IN THE INSUFFICIENT RANGE) I ONLY STARTED SUPPLEMENTING INGENNUS SUPER B COMPLEX ON FRIDAY 15/05/20?

Insufficient 145-300 pmol/L

Consider reducing dose >569

Serum Folate 17.80 8.83-60.8 nmol/L

Vitamin D (25OH) 52 50-175 nmol/L

Ferritin 116.0 13-150 ug/L

Anti-Thyroidperoxidase abs 275 <34kIU/L

Anti-Thyroglobulin Abs 118 <115

TSH 6.08 0.27-4.20 mIU/L

T4 TOTAL 57.7 66-181 nmol/L

Free T4 11.9 12-22.0 pmol/L

Free T3 4.27 3.1-6.8 pmol/L

Magnesium 1.00 0.66-0.99 mmol/L

Cortisol 525.0 6am-10am 113-456 nmol/L

hs-CRP 1.69 <5.0 mg/L

Above bloods drawn on 13/05/20 at 9:30am by myself and posted to Blue Horizon same day. Only had water prior no food no tablets etc

[greygoose]

With such a low B12 you should be tested for Pernicious Anemia before taking any supplements or having injections. And, if you do have PA, you would need B12 injections for life.

[Thyb in reply to greygoose]

Thank you greygoose. I have done a bit or research on low B12 and apparently should be tested for MMA and IF Intrinsic Factor to find out if my gut can absorb VitB12. I will ask this afternoon when I see GP. I will not have the B12 injection today until I have had other checks as supplementing with B Complex may help sort it. Doubt he'll be happy when I refuse injection but after all he doesn't have any blood results yet for B12 as surgery has never tested for it or ferritin

[greygoose in reply to Thyb]

But, stop the B complex now, or you will skew the results. That was my point.

[Thyb in reply to greygoose]

I haven't taken B Complex since Sunday. I rang Endo Secretary this Morning for my results from Blood test on Tuesday...

She simply said 'VitD 63.4, T3 3.8, T4 12.4, TSH 4.75 and said VitB12 and Ferritin are normal but she didn't have results for them, nor did she have reference ranges for any.....I asked for a copy of results and she said I'll receive them in a couple of days when they've been signed off!

[greygoose in reply to Thyb]

I suppose, because they always use the same lab, they don't realise that ranges differ from lab to lab, and need to be included. Letters from endos rarely include ranges. They just don't live on the same planet as us. However, your FT3 looks as if it could be right at the bottom of the range, which is far to low, and whilst TSH is probably only just over-range, it's high enough to indicate hypothyroidism to anyone who knows anything about thyroid. Unfortunately, endos rarely fall in that category.

'Normal' is pretty meaningless. It just means 'in-range'. But, when you see the width of the range, you understand that it cannot possibly be 'normal' all the way through. You will feel completely different with a result at the bottom of the range, to how you feel with a result at the top.

[Thyb in reply to greygoose]

TSH is only slightly higher from same lab as Weds 13/5...T3 and T4 are same as last Tues 13/5.

This Morning I upped my dose and took 25mcg levo, then tomorrow 50mcg. Sorry meaning 50mcg one day and 25mcg the next which means I will be taking an extra 75mcg weekly than I have done for a very long period of time.

I only usually take 50mcg every other day as advised by Endo because of intolerance.... I will need testing in 6 weeks to find out if that makes a difference. I'll need to up the dose very gradually. Not sure best way to do that but I have time to find out ....Thanks for reply. Always much appreciated

[HashiFedUp]

You certainly haven’t got enough thyroid hormones or meds so definitely need to increase them and several vitamins etc. You must be feeling unwell?!

[Thyb in reply to HashiFedUp]

Yes, chronic fatigue for so so long, in bed most of time, light headed etc etc, feel generally unwell But cannot sleep!!

[Thyb in reply to HashiFedUp]

Also, hate taking the levo...make me go to toilet far too frequent...sure doesn't help...feel like throwing them in bin but maybe not a good idea...Seem to make me even more tired...going round in circles

[Musicmonkey in reply to Thyb]

You may need a different brand? They have different fillers and you may be intolerant to the current one/s.

[Thyb in reply to Musicmonkey]

Hi Musicmonkey

I've tried Teva Eltroxin (Mercury Pharma), Wockhardt, Tirosint....Am on Actavis. Did you have to change brands at all or which brand do you take.

My Endo said I'm allergic to fillers but they all have them as do vitamins and minersls

[Musicmonkey in reply to Thyb]

Poor you That's not great.

I don't take much T4 now, but stick to Wockhardt. I believe some people don't do well on any T4.

[HashiFedUp in reply to Thyb]

have you ever tried NDT?

[Thyb in reply to HashiFedUp]

What is NDT and where do you get it from please? Is it available in UK