This is my first post, so if it’s in the wrong place - it’s in the wrong place. I finally had a positive blood test for coeliacs last month - diagnosis of IBS 25 years ago, fibromyalgia 3 years ago. Anyway, the last 2 weeks I’ve been starving, reactive hypoglycaemia symptoms within 5 minutes of eating. I had the heating on today. I did speak to my GP Monday as I had started getting cluster headaches and TMJ pain again. She prescribed me antibiotics and a nasal spray for sinusitis. Bless her heart, think she got it a bit wrong. I had a lovely chat with a lady from OUCH. I also asked the GP to repeat my thyroid function. It was met with a NO, your results were fine last month. Oh lovely woman too late I’ve ordered private ones on line as I’m looking for TGAB and TPO/TPEX not just TSH, FT3 & 4.
I’ve also ordered a cortisol and GTT test plus I’ve got a blood glucose monitor at home. Now, my question to those in the know is :-
Is it possible to have normal TSH, FT3 and FT4 but antibodies ?
Thank you 😊. Sending positive vibes 🦙🦥🌝
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Narwhal10
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Many people with autoimmune thyroid disease (hashimoto’s) have gluten intolerance...and about 5% have coeliac disease
Low vitamin levels are extremely common with coeliac, especially early on when not long been diagnosed
For full Thyroid evaluation you need TSH, FT4 and FT3 plus both TPO and TG thyroid antibodies tested. Also EXTREMELY important to test vitamin D, folate, ferritin and B12
Low vitamin levels are extremely common, especially if you have autoimmune thyroid disease (Hashimoto's) diagnosed by raised Thyroid antibodies
If not had vitamin levels tested Ask GP to test.
You may need to get full Thyroid testing privately as NHS refuses to test TG antibodies if TPO antibodies are negative
Recommended on here that all thyroid blood tests should ideally be done as early as possible in morning and before eating or drinking anything other than water .
This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip, best not mentioned to GP or phlebotomist)
Is this how you do your tests?
Private tests are available. Thousands on here forced to do this as NHS often refuses to test FT3 or antibodies
Medichecks Thyroid plus ultra vitamin or Blue Horizon Thyroid plus eleven are the most popular choice. DIY finger prick test or option to pay extra for private blood draw. Both companies often have special offers, Medichecks usually have offers on Thursdays, Blue Horizon its more random
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If antibodies are high this is Hashimoto's, (also known by medics here in UK more commonly as autoimmune thyroid disease).
About 90% of all primary hypothyroidism in Uk is due to Hashimoto's.
Is it possible to have normal TSH, FT3 and FT4 but antibodies ?
Yes, absolutely, for several reasons: if the damage to your thyroid isn't yet sever enough to affect your thyroid's level of production; or if you are on your way down from a Hashi's 'hyper' swing…
BUT, be aware, that just because the results are 'normal' - which actually only means 'in-range' in doctor-speak - doesn't mean you're not hypo. The ranges are too wide. So, if the range for the TSH went up to 4.5 or more, and your TSH was 4.4, you would be hypo because hypo starts at a TSH of 3, but because 4.4 is in-range, your doctor would tell you it was 'normal'. If the FT3 range was 3.1 - 6.8, and your results was 3.2, you would be hypo, because a euthyroid FT3 would be about mid-range. But, your doctor would say it's 'normal', because it's just in range. So, we cannot just go by what our doctors tell us, because our doctors don't know enough about it. We always have to get a print-out of results and check for ourselves.
Thanks Slowdragon and Greygoose. I did think as much but I just wanted to check. A reflexologist noted my calcium, B12 and small intestine were awry. So, I marched (well staggered) into my GPs and said this is not IBS it’s something more sinister. All my other bloods were ‘normal’. (Really is that why I am craving eggs and even though I hate dark chocolate that as well? 😂😂).
I strongly believe that the body knows what it needs and when you're deficient in something, you get these food cravings. Eggs could be due to the B12, but there's so much nourishment in an egg that it could be other things as well. Dark chocolate (which I, too, normally hate, but sometimes have cravings for) could be iron or magnesium. Cravings like that, I believe in giving in to.
Hmm. I wonder what the linked nutrient deficiency is to my craving today for a chocolate eclair. Would it have anything to do with finishing up the tax return and making a special trip to the P.O. to mail off checks to the governments?
Yes it is when I was first diagnosed with Hashimoto's Disease my TSH FT4 and FT3 were normal but my Antipo was over a100. I had to change multiple doctors before I found my Endocrinologist who was willing to listen to me. My main symptoms was tiredness, brain fog, and extreme hunger.
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One Lab, same time, 2 requests, same tests. TWO DIFFEREND RESULTS! Why is that?
Recently diagnosed
Confused all the time
Blood test results - not happy!
