My first time here...I have hypothyroid due to the fact they zapped it with too much iodine when I was hyper. They said at the time years ago now it was Graves Disease.
I take 125mg Levothyroxine daily
My query is that last week I had a blood test the results were back yesterday as I can see them on the patient choice app amongst other issues showing with my blood the Thyroid check shows my TSH level is 0.0...can anyone shed any light on this..
Do you have your full blood results, and ranges please? (these vary from lab to lab). Your TSH is obviously suppressed, but it would be useful to see T3 and T4 - and if you have them, ferritin, folate, vit D and B12. If your doctor has only tested TSH or TSH and T4, it is worth asking for full testing - my GP did the lot when I said it was as recommended by Thyroid UK, but a lot of other people here have to pay for private blood testing.
Also, you should have your blood tests as early in the morning as possible (when your TSH is highest) - and 24 hours after taking your previous dose of levo.
B12 is 2000...I have B12 injections every 3 months
and my T4 is 23.1
I didnt know all these other tests were available it has been most helpful
I have had a cold virus thing which always starts what appears to be by my thyroid gland that where it feels to be..hence the blood tests as this happened previously in November I am sure its just a run of the mill things there are lots of things going around..
Thank you so much for your time..it really is appreciated.
With a diagnosis of Graves Disease and having been treated with RAI your TSH is the least important measurement and should not be why your medication is adjusted.
You need to be monitored and dosed on both your T3 and T4 blood test results and these usually need to be in the upper quadrant of the ranges to give you a level of wellness.
I am with Graves and had RAI way back in 2005 :
In order to be well my TSH is suppressed at 0.01 and that's fine with me.
I became very unwell some 6 years ago now because of being monitored and dosed to keep my TSH in range - please don't go down the same route.
As you have the ability to see your blood test results, please advise if you can see any results for T3. T4, ferritin, folate, B12 and vitamin D - these all need to be monitored and kept high in the range for any thyroid hormone replacement to work effectively.
There is one specialist Graves Disease website written by a lady who has this disease, and went through the same treatment option. Elaine Moore is a medical researcher and she seems to have made this auto immune disease, her life's work. The website is stateside so there is some differing medical ' jargon ' but the content stands, world wide. There is an open forum much like this amazing site and suggest you start reading up, as Graves seems to be a poorly understood and badly treated auto immune disease.
Please come back with any questions, and can I ask, how are you currently feeling ?
That is all relating to my Thyroid..I did not realise there were so many other things to be checked to.
I will look up Elaine Moore thank you for that..I have never thought about looking into all this before..just went with the doctor.
I have not been well last 2 weeks think it is a cold virus which does actually feel as tho its my thyroid but cant be as they dont get colds..but that the area..hence the blood tests.
Thank you so much for your time it really is appreciated..
I think I sent my first attempt at a reply to someone else I do apologise trying to get used to it all.
So, ok, with a T4 at 23.1 you maybe over the range, but as there is no standardisation between laboratories they all run on different numbers, so unless you can see a laboratory range for T4, I'm guessing what the number may be.
However again, a T4 number without a T3 number doesn't tell us very much, as it is the level of T3 that you convert from the T4 that gives your wellness.
I think it quite pointless guessing what your doctor may want to talk about, as we haven't sufficient information.
If you are free of hypothyroid symptoms, and well on the dose you current take, suggest you don't accept a dose reduction of Levothyroxine, purely for him/her to tick box you as being ok and being ' in range ' .
Don't agree to dose reduction in levothyroxine without getting full thyroid and vitamin testing FIRST
Medichecks or Blue Horizon offer private testing
TSH, Ft3, Ft,4, folate, vitamin D and ferritin
All Thyroid tests should be as early as possible in morning before eating or drinking any thing apart from water. Last dose levo 24 hours prior to blood test
I have some results..if any one is able to explain...
Serum B12 ..reading 2000.....
range180 - 2000.....
Folate reading...3.25
range 3.1 - 18.3...
TSH reading ..0.9
range 0.35 - 4.5...
Ferritin reading .. 33
range 13 - 150...
FT4 .. 23.1
range 11 - 24...
MCV .. 105
range .. 86 - 100...
MCH .. 35.8
range .. 27 - 32...
I had my levo at 6 that morning app was 11.20. did have a cuppa and brioche roll at 8.
No antibody test or T3 test done...
Was asked to reduce my levo from 125 to 100.
I am waiting for results for instrinsic antibodies not sure what that is for.. I am going to make an appointment to see Gp I would like as much info as possible to go with..
One thing I have picked up on no Ft3 done..ever as far as I can see...
my gp did say " the endocrinologist s these days will hesitate in prescribing T3 to people as the evidence for this treatment is actually really lacking ".
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