What NDT is working for ppl/afraid of levo - Thyroid UK

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What NDT is working for ppl/afraid of levo

Krisinua profile image
8 Replies

Has anyone taken the wp recently? They changed their meds last may and it no longer worked I saw a big difference from prior month and new batch how the pills looked so I switched to armour which costs a fortune even w goodrx and it did nothing then switched to NP in August and it seemed ok but last few months I gained a ton of weight and have got a hoarse voice and dry skin and lethargy and I already was on Cytomel 5mcg twice a day so Dr just switched me to levothyroxine 50mcg and I felt horrible all day yawning and a racing heart so I am too afraid to take it again why would this cause me to feel so badly if the NP I was taking already contained this t4 in it? Wp is the only one that helped me the first 2 weeks my chronic feet pain of 13 years was 80% better as well as losing weight etc but the new ones changed did they ever change back? I am so upset I won't be able to support myself much longer feeling so bad. My labs didn't change much besides my tsh going from.9 to now 1.07 (does this mean the NP isn't working?) but I felt terrible. And I am now on the verge of becoming diabetic because of this weight gain and lethargy. What is working now for ppl?

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Krisinua
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Algarrobo profile image
Algarrobo

Hi Krisinua, for two years I tried different medications, my doctor started me with the natural one, and then all the regular ones but they worked for a couple of months making me feel a bit better but then the side effects were very bad, exhaustion, nauseous, foggy, pain in my joints, pain in my body, headache, gain weight, sneezing, and more... plus my body was not converting T4 into T3 so he changed me to Cytomel, the difference was like day and night, it saved my life. I started on a very low dose, the lowest you can start ones a day in the morning. After a while we add a bit more, then we added a second dose in the afternoon so this is working very well. I'm not perfect but I can function a lot more and I don't have side effects. I do have a borderline diabetic reading on my blood work but my doctor said that it is a side effect of taking thyroid medication, I'm not overweight, my eating habits are extremely clean all my life, no processed food, no smoking ever, no alcohol ever, no drugs ever, extremely active physically till 4.5 years ago that I had a concussion. After this accident, I was diagnosed with Hashimotos. This was directly caused by my accident and the hit to my head, according to the team of doctors that are treating me. This last week I was allowed to start doing hot yoga again so excited. Meditation is an everyday practice, eating anti-inflammatory food is a priority (I do cheat here and there ones in a while). I do have flares but they are more distant, and they last lest than before, their intensity has not changed. I hope that this helps you, if you have any questions please contact me.

Krisinua profile image
Krisinua in reply toAlgarrobo

So u take t3 alone? That is so funny you said sneezing cuz I had sneezing attacks too the day I took the Levothyroxine. Lol are you taking any ndt now? I didn't nothing a difference when I added the t 3

Algarrobo profile image
Algarrobo in reply toKrisinua

I'm only on Cytomel. My reactions were to the fillers of the medication, lactose, gluten, and others. In UK you have a T4 medication that is free of these fillers but we don't have it in Canada, I don't remember the name but the name starts with a T .... I noticed the difference after two months because your body needs that time to clean the T4 medication. Cytomel is a much faster action medication. You need to be patient through this process.

Krisinua profile image
Krisinua in reply toAlgarrobo

What did you notice after 2 months? I am actually in the USA I can't find a forum for USA.

Algarrobo profile image
Algarrobo in reply toKrisinua

My energy level went up, my joints paint stopped, more stable in general, my mood is not as bad as before, I started getting my motivation back, my brain is not as bad as it was before, still have ups and downs but they are not as dramatic as before...just be aware that my Post Concussion Syndrome symptoms are almost exactly like the Thyroid symptoms so my doctor can't say if they are from one or the other.... my common sense tells me that if I'm taking medication for thyroid and I feel better after is because my thyroid, I still have other symptoms that are very much from my concussion-like fogginess, extremely ADD, short term memory issues, blurry vision, concentration issues, can't handle nosey places or too much light, and I have zero tolerance for stupidity. This group is the best I find around. If you are interested in learning more on T3 therapy is a group I follow on Facebook and it is pretty good, the name is The Thyroid Patient's Manual , Paul is the one that created this group. He wrote few books based on his own experience dealing with the system, medications, related to this illness, he has an enormous amount of knowledge. Also, I follow the group AIP Elimination Diet Support Group on Facebook. Good luck!

Krisinua profile image
Krisinua in reply toAlgarrobo

How much t3 are you on? I take 10 mcg a day didn't notice anything after adding it in june.

Algarrobo profile image
Algarrobo in reply toKrisinua

I'm taking 12.5 mcg in the morning and 5.0 mcg in the afternoon. I get my blood tested every 3 months and my numbers are much better but my T4 was low so my doctor added Levo again but it made me very sick so I stopped it. I think that I'm in need of an increase...this last week I'm feeling not as well so probably I need a little kick.

shaws profile image
shawsAdministrator in reply toKrisinua

10mcg of T3 is quite low i.e. equal to around 40mcg of levothyroxine. Did you add it to your dose of levo? These two links may be helpful:

naturalthyroidsolutions.com...

hormonerestoration.com/

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