Who's feeling better?

[imdelightful]

I slept through the night again. Woke up to no headaches, no anxiety, no constipation and my skin looks smoother, hair still looks dry. All down to reducing meds T3 and T4. Will take about two weeks for blood results, hopefully!

[Lalatoot]

Don't rush to get blood test. 6 - 8 weeks after any medication changes is the rule of thumb. I was out for lunch yesterday for the first time in 6 months so hugs all round!

[imdelightful in reply to Lalatoot]

Hi Lalatoot. I'm happy for you going out for the first time in 6 months. Makes you feel you've defeated all that was not quite right .

[Sarahlouise1980 in reply to imdelightful]

Why did you have to reduce your meds imdelightful? What symptoms were you having? xx

[imdelightful in reply to Sarahlouise1980]

I started on a high dose of T3 Liothyronine 25 mcg twice a day, I was unaware how strong they are in comparison to Levothyroxine. After reading advice on here I began to learn how to get myself back together again.

With the high dose of T3 Liothyronine I was getting awful daily headaches, paranoia , severe depression and terrible anxiety. When I mentioned this in the open people were suggesting about the wrong dose. I listened and it worked. I am so grateful to the folk who read my posts .

After approx' ten days on 25 x 2 mcg T3 I reduced the dose slowly down to 6.25 mcg three times a day. It worked , so far so good.

[birkie]

Hi imdelightful

What have you done to feel so good I'm intrigued...quick run down on my journey,,diagnosed with hyperthiyroidism in 2018...had to have thiyroid removed in May this year diagnosed with graves....put on 125gm of Levo been steadily reduce I'm now on 50gm my TSH is still suppressed at 0.05 my T3 is 3.1 my T 4 is 13.3...my GP wants to take me off Levo for 6weeks to see if my TSH rises...but my T3 is on the floor....what are you taking to feel so well....🤔🤔

[Rosebud1955 in reply to birkie]

Hi Birdie,

I hope it’s not my brain fog gin play here, are you only on 50mcg at the moment? After a thyroidectomy that’s barely enough to keep you out of bed. I had TT in 2017 and is 100mcg + 10mcg T3, just putting on the pounds, lost almost all my hair, turned totally grey in the past 3 months, severe plantar fasciitis and bone spur on both heel, no energy. I can’t imagine your doctor would try to take you off T4 for six weeks, how would you be able to cope? Does he/she want to disable you? I hope you don’t agree to that. Just curious, how are you feeling just being on 50 mcg.

[birkie in reply to Rosebud1955]

Hi thanks for the reply

I feel awful I'm actually in bed most days as I have no energy.. sleeping is weird too some days I'm awake right through and can't sleep eventho I feel so fatiqued then I'll sleep for hours I was hyper on 125mg which was my starter dose I've only had 2 sets of bloods taken in 6months as my surgeon kept saying I was showing hyper symptoms my last bloods were the ones I've put in the reply I've now asked to be seen by an endo as I only saw one about 2 months before my op and never saw one after my op.. Unfortunately I do have other illnesses 3 are auto immune 😢 I'm hoping I see the endo before my gp takes me off the 50gm of levo if not I'm going to call his secretary again to ask for advice on my GP wanting to take me off levo.. ❤️

[Rosebud1955 in reply to birkie]

Hi Birdie

When you say hyper are you referring to low tsh? Do you have true hyper symptoms ? Low tsh is not an indication for being hyper, at least not when you have no thyroid. My tsh has never been greater than 0.05, I’m definitely not hyper, in spite of what my uneducated Endo thinks. My Ft3 is at the very bottom, as well as my FT4. I spend most of my time in bed or on the couch. Not able to go for walks anymore due to my fasciitis and low energy. Don’t let him/her make you more ill. They’re causing more harm than good to their thyroid patients, it’s very sad and cruel.

Advocate for your health!!!!!

[birkie in reply to Rosebud1955]

Hi

My TSH is 00.5..my T3 is on the floor my T4 is 18% in range... That's what I'm like in bed or on the sofa.. Its a chore to get to the loo or put the kettle on.. I did have hyper symptoms one month after surgery but my surgeon said it was the levo to much and reduced to 100mg then did it again on next app until now I'm on 50mg I have another blood test on Wed this week I'm posting them on here when I get them if my TSH is still suppressed and my T3 is still on the floor I'm contacting the endo before I do anything 👍

[Rosebud1955 in reply to birkie]

Yes, please do. Make sure your nutrient levels are optimal as well. Mine are all optimal, I have requested for them to investigate my adrenals and pituitary. I’m now awaiting the results from Pituitary MRI which was done last week. If the results are normal, I will request a C.T scan of my adrenals. My ACTH and aldosterone levels are way high, indicating that there might be a problem with one of those glands. The Endo and my G.P. are fed up with me and my complains, I really don’t care what they think of me, I just want to feel well enough to function again. I have become house bound because I have no desire to even socialize, I’m focussing to much on my illnesses and that’s not good. I too have two other autoimmune illnesses, one includes chronic Lyme disease. My pain from fasciitis and heel spur are debilitating, I definitely cannot continue living this way. I had to take an early retirement because I couldn’t cope with work anymore. I have gained so much knowledge and confidence from this forum, I will be forever thankful. I now have the confidence to advocate for myself. I don’t always win, but I feel confident enough to keep my Endo on his toes, whether he likes me or not.

I hope you and everyone on this site who continue to struggle, find the strength and courage to continue fighting for good health.

Blessings on you all.