Can it be that my Hashimoto is causing me constant fatigue. The problem is that my TSH. FT4 and FT4 are in normal range. For this reason doctors are not giving me any medications.
I tried vitamin B12, D and selenium and magnesium. Still no change! I am tired all the time. Please help🙏
evia
The problem is that my TSH. FT4 and FT4 are in normal range. For this reason doctors are not giving me any medications.
What are your current results? "Normal" doesn't mean anything, it's where in the range your results lie that give clues as to a potential problem. Please post latest results with reference ranges so we can comment.
Also what are your current levels for
Vit D
B12
Folate
Ferritin
and what doses of any supplements are you taking?
Evia The doctor saying in range means nothing. The range is wide and the place you are in that range may not be right for you. We need to find where we feel best. For example my ft3 is in range at 4.5 (range 4.0 - 7.0) but I need it higher at 5.5.
OK I will send my latest results. The point is that I feel awful most of the time. All other medical conditions are ruled out. I tested for almost everything under the sun including Lymes disease- which is negative.
Feeling awful all the time is what thyroid problems are like. Unfortunately there are no quick solutions. To overcome thyroid problems we need to keep close tracks of tsh, ft4 and ft3..particularly the last two. Only by monitoring these, monitoring our symptoms and slowly adjusting medication doses can we hope to find our optimal levels.
So are you on any Levothyroxine?
If so, how much and do you always get same brand of Levothyroxine
For full Thyroid evaluation you need TSH, FT4 and FT3 plus both TPO and TG thyroid antibodies tested. Also EXTREMELY important to test vitamin D, folate, ferritin and B12
Low vitamin levels are extremely common, especially as you Hashimoto's
Recommended on here that all thyroid blood tests should ideally be done as early as possible in morning and before eating or drinking anything other than water .
Last dose of Levothyroxine 24 hours prior to blood test. (taking delayed dose immediately after blood draw).
This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip, best not mentioned to GP or phlebotomist)
Is this how you do your tests?
Private tests are available. Thousands on here forced to do this as NHS often refuses to test FT3 or antibodies or all vitamins
thyroiduk.org.uk/tuk/testin...
Medichecks Thyroid plus ultra vitamin or Blue Horizon Thyroid plus eleven are the most popular choice. DIY finger prick test or option to pay extra for private blood draw. Both companies often have special offers, Medichecks usually have offers on Thursdays, Blue Horizon its more random
Are you on strictly gluten free diet? Or tried it?
Hashimoto's frequently affects the gut and leads to low stomach acid and then low vitamin levels
Low vitamin levels affect Thyroid hormone conversion
Poor gut function can lead leaky gut (literally holes in gut wall) this can cause food intolerances. Most common by far is gluten. Dairy is second most common.
According to Izabella Wentz the Thyroid Pharmacist approx 5% with Hashimoto's are coeliac, but over 80% find gluten free diet helps, sometimes significantly. Either due to direct gluten intolerance (no test available) or due to leaky gut and gluten causing molecular mimicry (see Amy Myers link)
Changing to a strictly gluten free diet may help reduce symptoms, help gut heal and slowly lower TPO antibodies
While still eating high gluten diet ask GP for coeliac blood test first or buy test online for under £20, just to rule it out first
Assuming test is negative you can immediately go on strictly gluten free diet
(If test is positive you will need to remain on high gluten diet until endoscopy, maximum 6 weeks wait officially)
Trying gluten free diet for 3-6 months. If no noticeable improvement then reintroduce gluten and see if symptoms get worse
I am not on any medication. Because doctors say my thyroid is normal. But I feel so bad that I have to be in bed all the time! That is from approx. 12 months.
Yes it's possible to be extremely unwell and bed bound when hypothyroid.
First step is to get hold of your actual results and see what has been tested and equally important what hasn't been tested yet
Please add actual results and ranges if you have them
full Thyroid and vitamin testing is essential.
For full Thyroid evaluation you need TSH, FT4 and FT3 plus both TPO and TG thyroid antibodies tested. Also EXTREMELY important to test vitamin D, folate, ferritin and B12
Recommended on here that all thyroid blood tests should ideally be done as early as possible in morning and before eating or drinking anything other than water .
If you have high thyroid antibodies and hypothyroid symptoms you should be referred to a thyroid specialist for further testing and a trial of Levothyroxine
Email Dionne at Thyroid Uk for list of recommended thyroid specialist endocrinologists
I think my condition is quite unusual though. All the people I've seen or read about with Hashimoto's are on their feet and living almost a normal life. Not in bed like me. I think this is very weird.?
Thank you Janey. My antibodies are about 121. High, but not so much.
Are these TPO antibodies?
Strictly gluten free diet helps many people with Hashimoto's
According to Izabella Wentz the Thyroid Pharmacist approx 5% with Hashimoto's are coeliac, but over 80% find gluten free diet helps, sometimes significantly. Either due to direct gluten intolerance (no test available) or due to leaky gut and gluten causing molecular mimicry (see Amy Myers link)
Changing to a strictly gluten free diet may help reduce symptoms, help gut heal and slowly lower TPO antibodies
While still eating high gluten diet ask GP for coeliac blood test first or buy test online for under £20, just to rule it out first
Assuming test is negative you can immediately go on strictly gluten free diet
(If test is positive you will need to remain on high gluten diet until endoscopy, maximum 6 weeks wait officially)
Trying gluten free diet for 3-6 months. If no noticeable improvement then reintroduce gluten and see if symptoms get worse
chriskresser.com/the-gluten...
amymyersmd.com/2018/04/3-re...
thyroidpharmacist.com/artic...
scdlifestyle.com/2014/08/th...
drknews.com/changing-your-d...
restartmed.com/hashimotos-g...
Non Coeliac Gluten sensitivity (NCGS) and autoimmune disease
ncbi.nlm.nih.gov/pubmed/296...
The predominance of Hashimoto thyroiditis represents an interesting finding, since it has been indirectly confirmed by an Italian study, showing that autoimmune thyroid disease is a risk factor for the evolution towards NCGS in a group of patients with minimal duodenal inflammation. On these bases, an autoimmune stigma in NCGS is strongly supported
ncbi.nlm.nih.gov/pubmed/300...
The obtained results suggest that the gluten-free diet may bring clinical benefits to women with autoimmune thyroid disease
nuclmed.gr/wp/wp-content/up...
In summary, whereas it is not yet clear whether a gluten free diet can prevent autoimmune diseases, it is worth mentioning that HT patients with or without CD benefit from a diet low in gluten as far as the progression and the potential disease complications are concerned
'I'm tired all the time'
I'm so cold all the time
Feeling down and tired all the time
Thyroid..dry mouth all the time
Fatigue, hair loss, pain - typical Hashimoto but endocrinologist says all is fine
