Sleeping all the time

Hi iv been to my dr and have asked to be referred to a endo but he has refused he said he didn't think I needed to see one I ask why he felt that and he said my levels were right in the middle where they should be ? I am so tired I get up at 7am with my two children well one is 17 and one 15 so there not baby's I drop them to school and college I come home and I sleep until 1pm easy, I get up and still fell tired I'm then back in bed by 7pm and I sleep and repeat it all over again😩 I have been put on morphin patches 25mg fir the pain I'm in from an op I had 2years ago nearly, I'm at my wits end and really don't want to live like this anymore what I want to know is has anyone had any joy from seeing prof Colin Dayan in Cardiff as I'm thinking to see him privately ( sorry for the long post ) but I'm really really desperate even thinking I don't want to live anymore if this is what is to be my life . Any advice would be great x

15 Replies

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  • "Levels right in the middle" rings huge alarm bells for me. I'm afraid that's the medical profession today - all paint by numbers. But with thyroid blood tests, if the numbers are in the middle, there's probably something wrong.

    While we can't give medical advice here, we can give you our experience. Two things to try. First, get a copy of those blood test results (you're entitled to have them) and post them here for folk to have a look at and advise. Two - find another GP. This one seems particularly uninterested in getting people well.

    There are other things to check too. Commonly, we find folk are deficient in Vitamin B12, ferritin' and Vitamin D and any one of those can leave you feeling terrible. A good doctor would check all of those things before dismissing you as "a woman of a certain age" (which increasingly these days seems to be all ages of woman!).

    Big hugs - you've come to the right place. x

  • Reminds me of the first time I was told by a doctor that a minor problem was because I was getting old. I was 27!

  • Hi I can see you joined the forum in 2013 - but there isn't any information on your Profile to help us understand your situation. Are you being treated for your thyroid ? What medication are you taking in addition to the pain relief ? Do you have any test results to help us guide you ?

    Sorry - lots of questions :-)

    You are entitled to copies of blood test results - which would be helpful - as you can then post them here - with their ranges and people will comment.

    Fatigue can be due to the pain medication. Morphine patches sounds quite strong relief. Or low Iron - B12 - VitD - have you had them tested recently ? Before seeing an Endo who may or may not be able to help you - I would attend to the basic building blocks of health by having your B12 - VitD - Ferritin - Folate - Iron tested. Do not accept normal or OK from your Doc - they need to OPTIMAL - with B12 at the top of the range - Ferritin around 80/90.

    Happy to comment when we have more information :-) Do not despair - so many helpful people here....

  • All the above...ditto.

    As for your op.; is the scar area hurting? Did the doctor/surgeon tell you to massage the scar as soon as it was healed? You may have pain from deep adhesions of scar tissue. You may need to see a Scar Work therapist.

  • I too have this sleep problem, I can fight it but if I do I get headaches and the pain in my arms legs and shoulders was awful. My test results were tsh low and t4 high and my pulse ( which I use as a guide to my levels) is a good 74. After numerous recent GP visits I paid for a private blood test and found for myself that I had extremely low vitamin D. Now supplementing Vit D and magnesium and 6 weeks later starting to feel the benefit. Please don't assume it's just your thyroid levels, although gps do if you have this problem. I would recommend take control of this yourself and get a full blood work done, (mine was bio medical)

  • As Marz says, we haven't much information to go on.

    If you've not had a recent blood test for your thyroid hormones make a new appointment for the earliest possible and fast (you can drink water). Leave about 24 hours between your last dose of levo and the blood test. (the day before put your levo in another place as sometimes we're on automatic pilot).

    Ask GP to test your vitamins/minerals.

    Get a print-out of your results with the ranges and post. It sounds to me as if you are very undermedicated - if on an optimum you should have no pain, nor fatigue etc.

  • Just a thought could the morphine patches be contributing to the tiredness

  • Thank you all I'll do that as for the morphin I think they do contribute to my tiredness but not to this much, some said to change my dr but as I'm on a few meds that are costing the NHS money I don't think another dr would take me on I cost them to much 😩 But I will get my bloods done and post it thanks again for your answers much appreciated 👍👍👍 x

  • ...what are the other meds you are taking ? Perhaps they are working against each other and not helping your general well being :-)

  • Hi Tomuta,

    Look up the information on hypothyroidism on Chris Kresser's website.

    As well as vitamin D & magnesium, try upping your B12 levels. I've started making kefir, rather than take tablets. I also eat brazil nuts for selenium, & I'm about to try adding kelp for iodine.

    I've been taking NDT for 18 weeks, & that's helped a lot, but I've bought that privately after finding two local endocrinilogy departments useless. I still have a 4pm crash, but don't feel so much like a doormouse.

    Mel

  • I don't think Prof Dyan does private, I could never find him via private. Are you in Wales? I got an endo who consulted Prof Dyan for me and got T3 and NDT via that. But I would say write to your GP and again say you want to see an endo, why, how your life is and that if he still refuses you want his reasons in writing. Also you need to find out what your TSH is, if it isn't 1 then it isn't optimal and you need to tell him that to use as evidence that he doesn't understand thyroid adequately and you need to see an endo. Putting you on morphine rather than dealing with your scars worries me, plus it is probably this op that has set you off kilter big time. That happened to me.

  • Thank you I will look at the website I can't believe how helpful everyone is if I hug every one of you I would bless you all many thanks I'll keep you posted 😘 xxx

  • Go back to your doc and tell him that may be his opinion but its not yous!

  • Have free T3, free T4, reverse T3 and TSH checked.

    Sounds like hypothyroid which can also cause aching muscles.

    High reverse T3 can cause this in spite of other tests being normal

  • GO BACK TO YOUR DOC AND INSIST THAT YOU HAVE A FAST BLOOD TEST HE CANNOT REFUSE ONE IF YOU ARE TIRED I HAVE GOT TO HAVE ONE AS I GET SO TIRED I FALL ALSLEEP ON MY WHEELCHAIR SO HE HAS ORDERED A FAST BLOOD TEST TO SEE WHY I AM SO TIRED AND CHECK TO MY THYROXIN LEVEL THIS WAY EVEN THOUGH THE LEVEL IS OK AND ALSO MY SUGAR LEVEL

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