Sort of panic after blood-test >100 TSH

[olsson87]

Im new here..

I have had my thyroids removed completely for about 4 years ago now, I have tried all of the different levaxin types and brands without me feeling well and being able to work at a normal job for longer times, my bloodtest's where looking good though.

I live in a country where NDT isnt considered as a medication and is impossible to get any doctors to help me with this, but now after all this feeling bad, being depressed and extremely tired, In took the matter in my own hands, I ordered some NDT from internet and actually started feeling like myself again. (with some days feeling crap) but to go for 100% of bad feeling to 80% of feeling good Im just really glad I did this experiment.

my dose before when I took Levaxin was 150mcg

And I now eat "Natural Sources Raw Thyroid"

this is the ingredient list:

Thyroid tissue 50 mg, adrenal tissue 20 mg, pituitary tissue 10 mg, thymus tissue 5 mg, spleen tissue 5 mg, kelp 300 mg.

And im taking 3 a day for the moment (1 morning, 1 mid-day 1 evening)

But Now after my first blood-test after going with NDT for 2 month's my blood-test looks like this:

TSH - >100

T4 - <0,500

T3 - <0,400'

reference -

TSH -> 0,27-4,2

T4 - >12,0 -22,0

T3 - >3,95-6,80

And Im gaining weight like never before.

What should I do????

*Updated with reference and picture

[helvella Administrator]

Do you have the reference ranges for those tests? If so, please post them.

Trying to working out where you are without reference ranges requires guesswork - not easy for us, and not good for you if we get it wrong.

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[olsson87 in reply to helvella]

TSH - >100

T4 - <0,500

T3 - <0,400'

reference -

TSH -> 0,27-4,2

T4 - >12,0 -22,0

T3 - >3,95-6,80

[greygoose]

Natural Sources Raw Thyroid is not NDT. It is what we call a 'glandular', and probably doesn't contain any hormone. And, the iodine content is a really bad idea.

If you're taking 3 tablets a day, and each one contains 300 mg kelp, you're probably getting more than twice the rda of iodine. Iodine is antithyroid, so you're probably doing more harm than good with that. And you've been taking them for 2 months.

Excess iodine is supposed to be excreted. But, in my experience, that doesn't work very well. The iodine can build up. And, excess iodine can cause all sorts of problems, like triggering Hashi's. And, if you already have Hashi's, making it worse. So, it's really not something I would recommend.

[SeasideSusie Remembering]

olsson87

greygoose is correct. That supplement contains 300mg kelp which is equal to 150mcg iodine which is the RDA.

The serving suggestion on this supplement is 1 capsule. You are taking 3 which gives you 450mcg iodine which is 3 times the RDA.

Iodine does build up, I can confirm that. I did an iodine test and my level was exactly in the middle of the range at 150 (100-199). My then practioner put me on a multi supplement which contained 150mcg iodine, despite me saying I wasn't deficient she said it was fine as "there is only a small amount of iodine in the supplement". Well, when I retested just a few months later my iodine level came back at 250 (100-199). One of the reasons I ditched the practioner and ditched the supplement.

[olsson87]

Ok.

Thats really bad.

I dont know what I should do then.

I do ofcoarse want to get NDT (which I thought I had) but I have no idea on how now.

I feel that NDT is the only thing thats going to let me get my life back.

:,(

I will do whatever it takes.

I even consider moving to another country if necessary

Im so grateful that I found this forum and have the possibility to speak to you.

Thanks from tears in my eyes and the bottom of my heart.

[Nanaedake]

If I was in your situation I would restart standard levothyroxine while I got this sorted out. The standard starter dose is 50mcgs but you may need to start on more than that if you do not have a heart condition and are not frail.

There could be a variety of reasons why you did not do well on levothyroxine and it might not be the medicine itself. Once back on levothyroxine you can investigate the reasons and/or source the correct NDT.

[olsson87 in reply to Nanaedake]

Ok.

Thank you

[Lora7again]

You must feel dreadful with a TSH that high ... you need to start Levothyroxine straight away. You can get NDT from abroad if you need it ... I got mine from Thailand and it arrived in about 10 days. I took Thyroid S and the man who sent it to me sent me a email showing the product and then the parcel he was sending by air mail. It didn't get stopped by customs and my postman delivered it to my door. The member called reallyfedup told me how to pay for it and how to get it. I haven't seen her on this site for a while but her whole family suffer from thyroid disease and she is really knowledgeable . She has also helped other desperate women who need NDT because they can't tolerate Levothyroxine.

[olsson87 in reply to Lora7again]

Oh.

Do you still get your NDT from that man?

Do you think its just for me to send a private message or is it possible for you to send me to her somehow? like a referral?

Thank you so much for this.

You give me hope

[Lora7again in reply to olsson87]

It was a man I contacted in Thailand ... reallyfedup gave me his details. I don't know if she is still on this site at the moment. Start a new thread asking for other members to message you about how to get Thyroid S from Thailand and you will get replies ... I did.

[Lora7again]

I have sent you a message

[Lora7again]

I have found his facebook page and have messaged you the link ...click on it.

[Angel_of_the_North]

You re not taking NDT, you are taking a thyroid glandular supplement which may not contain any thyroid hormones at all. You need real NDT or thyroxine/liothyronine before you kill yourself - you are very, very hypo. You can buy real NDT on the internet

[olsson87]

I have gone back to levo for now, and will try all I can do to get hold on real NDT as soon as possible.

Thanks everybody that took time to write to me.

If anybody have any input or help to give feel free to write to me.

Thank again.