Came off carbimazole July 19 after diagnosis April 18.
Bloods done last Friday to check all levels which I’m collecting from GP tomorrow, but they’ve just rung to say I need to take vit d supplements as my level is 49 (normal range 71-200).
Is this normal in remission, is this related to graves or could it be completely unrelated??
Thank u 🙏🏻
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FiFiFillary
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Since with Graves Disease, in your hyper phase, your metabolism would have been running fast, and there is a very good chance that you were not able to utilise all the vitamins and minerals from your food, as you would have done prior to being ill.
The anti thyroid medication you were prescribed to block the overproduction of thyroid hormone that led to your being " hyper " will have slowed down your metabolism in an attempt to bring it back into balance, making life more comfortable for you.
There's a chance your medication might have been reduced a little more than was your own natural metabolism, which in turn can cause you to become " hypo " thyroid, and once again if your metabolism is too slow, there is the same risk of not being able to fully utilise nutrients from your food.
It is therefore essential that ferritin, folate, B12 and vitamin D are all tested and maintained at an optimal level for any thyroid hormone, whether your own or through medication to work effectively.
Graves is an autoimmune disease and as such it's for life, it's in your blood, and your DNA.
You might like to read up further on the Elaine Moore Graves Foundation website .
Elaine Moore has the disease and went through RAI back in the 1990's and finding little understanding or help from the medical profession, wrote a book to help other people in the same position as her.
She now a leading researcher into all things Graves and runs a well respected website with an open forum much like this amazing site. It is Stateside, so medical protocol is a little different, but it is well worth checking out.
There are sections on alternative, holistic, life style, food, etc. choices, and being actively involved and knowledgeable in management of this disease will equip you better in your journey.
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