Think blood test have gone the wrong way what m... - Thyroid UK

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Think blood test have gone the wrong way what my doctors wanted it too.

Haze1975 profile image
7 Replies

Lasted blood tests after reduced down 150 levothyroxine to 125 levothyroxine for about 8 weeks blood test wasn’t great. and then back up to 150 levothyroxine 8 weeks later didn’t drop tsh back to normal of 0.1. But vitamin D level still not that great but has came up from 20 to 31.5 so only a bit. Blood test results, anyone have any idea to why this hasn’t gone back to normal and just has raised my tsh level instead?

Test resultTHYROID STIMULATING HORM.;VITAMIN D Report,

calcium level (XE2q3) 2.26 mmol/L [2.1 - 2.55]

vitamin D level (XE2e7) 31.5 nmol/L [80 - 150]

TSH level (XaELV) 3.25 miu/L [0.35 - 4.94]

inorganic phosphate level (XE2q4) 0.9 mmol/L [0.8 - 1.5]

adjusted calcium concentration (Xabpk) 2.28 mmol/L [2.1 - 2.55]

albumin level (XE2eA) 39 g/L [35 - 50]

Thanks for any advice.

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SeasideSusie profile image
SeasideSusieRemembering

Haze1975

Blood test results, anyone have any idea to why this hasn’t gone back to normal and just has raised my tsh level instead

Why hasn't what gone back to normal? The only thyroid test there is TSH.

Are they only testing TSH? This is not enough, you need TSH, FT4 and FT3 tested, as SlowDragon mentioned in reply to your previous post.

Are you doing the test at the same time every time, i.e. no later than 9am, leaving off Levo for 24 hours, fasting from evening meal/supper the night before and drinking water only until after the blood draw?

But vitamin D level still not that great but has came up from 20 to 31.5 so only a bit.

What form of Vit D are you taking - tablets, capsules, softgels, oral spray, sublingual liquid?

How much Vit D are you taking?

Are you taking the important cofactors - magnesium and Vit K2-MK7?

How are you other vitamins now?

By the way, it is very difficult to pick out the test and results when posted like that, it is very hard on the eyes, all we need is just the name of the test, result and reference range. In future it would help responders if you would simplify it by posting like this:

TSH: 3.25 miu/L [0.35 - 4.94]

:)

Haze1975 profile image
Haze1975 in reply toSeasideSusie

Vitamins D was only given at a high dose at the beginning of April. For 8 weeks. Then told to take one from a health shop. They forget to retest it the last time. The doctors will only give me a copy of the tsh, th4 and ft3 when they check thyroid goblin. Tsh is meant to be 0.1 because of thyroid cancer that I’d had. It should of went down when medication went up again. But instead it raised it even more instead of dropping it.

And yes to blood test. The walk in bloods open at 8am. I go as early as possible. No tablets that morning. Normal taken them at 5am. And don’t eat breakfast anyway.

SeasideSusie profile image
SeasideSusieRemembering in reply toHaze1975

Vitamins D was only given at a high dose at the beginning of April. For 8 weeks. Then told to take one from a health shop. They forget to retest it the last time.

That's correct. Loading doses totalling 300,000iu over a number of weeks. They tend to not retest but it's important that you know your new level. Most people have to do a private test. Some doctors will continue with a maintenance dose until you reach 50nmol/L, some wont. So once they stop prescribing it's up to you to continue supplementing by buying your own.

The Vit D Council recommends a level of 125nmol/L (50ng/ml) and the Vit D Society recommends a level of 100-150nmol/L (40-60ng/ml).

To reach the recommended level from your current level of 31.5nmol/L (12.6ng/ml) requires 4,900iu D3 daily (nearest is 5,000iu).

vitamindcouncil.org/i-teste...

Have you bought any? What form?

Oil based softgels (eg Doctor's best) give superior absorption over tablets and capsules. If you have Hashi's then for best absorption an oral spray (eg BetterYou) or sublingual liquid is recommended.

Retest after 3 months.

Once you've reached the recommended level then you'll need a maintenance dose to keep it there, which may be 2000iu daily, maybe more or less, maybe less in summer than winter, it's trial and error so it's recommended to retest once or twice a year to keep within the recommended range. You can do this with a private fingerprick blood spot test with an NHS lab which offers this test to the general public:

vitamindtest.org.uk/

As you were Vit D deficient then supplementing will likely be for life. I was severely deficient with a level of 15nmol/L, brought my level up to 202nmol/L in 2.5 months by self supplementing, now need 5,000iu D3 daily to keep within the recommended range and my level is now 140.

Your GP won't know, because they're not taught much about nutrients, but there are important cofactors needed when taking D3 as recommended by the Vit D Council

vitamindcouncil.org/about-v...

D3 aids absorption of calcium from food and K2-MK7 directs the calcium to bones and teeth where it is needed and away from arteries and soft tissues where it can be deposited and cause problems such as hardening of the arteries, kidney stones, etc.

D3 and K2 are fat soluble so should be taken with the fattiest meal of the day, D3 four hours away from thyroid meds if taking tablets/capsules/softgels, no necessity if using an oral spray

Magnesium helps D3 to work. We need Magnesium so that the body utilises D3, it's required to convert Vit D into it's active form. So it's important we ensure we take magnesium when supplementing with D3.

This may be why your level hasn't improved much, or you may not be taking enough D3 or you may be taking an inferior form of D3 and not taking it with dietary fat.

Magnesium comes in different forms, check to see which would suit you best and as it's calming it's best taken in the evening, four hours away from thyroid meds if taking tablets/capsules, no necessity if using topical forms of magnesium.

naturalnews.com/046401_magn...

drjockers.com/best-magnesiu...

afibbers.org/magnesium.html

Check out the other cofactors too (some of which can be obtained from food).

Haze1975 profile image
Haze1975 in reply toSeasideSusie

Are you taking the important cofactors - magnesium and Vit K2-MK7?

And no to this question.

I’d take 150 levothyroxine,(Thyroid) 1 tablet of Tesco hay fever and allergy relief cetirizine, (hay fever) 2 x ranitidine 150mg (stomach), blue in haler, symbicort, 10mg montelukast. (Breathing)

SeasideSusie profile image
SeasideSusieRemembering in reply toHaze1975

Are you taking your Levo on it's own, on an empty stomach with water only, at least 2 hours away from other medication so that nothing affects it's absorption.

Haze1975 profile image
Haze1975 in reply toSeasideSusie

Yes. I normally only eat lunch and dinner. Sometimes if I’m not hungry I’d only eat 1 meal a day. I’d take a tablet for for vitamin D.

I’d see if I’d can order a spray form. Thanks for advice.

SlowDragon profile image
SlowDragonAdministrator in reply toHaze1975

Technically your GP should prescribe Vitamin D at 1600iu daily for minimum of 6 months

But using vitamin D mouth spray by Better You is likely to give quicker improvement

GP will only prescribe to bring vitamin D up to 50nmol anyway

Aiming to improve vitamin D by self supplementing to at least 80nmol and around 100nmol may be better .

Once you Improve level, very likely you will need on going maintenance dose to keep it there.

Retesting twice yearly via vitamindtest.org.uk

Vitamin D mouth spray by Better You is good as avoids poor gut function.

It's trial and error what dose each person needs.

Local CCG guidelines

clinox.info/clinical-suppor...

Government recommends everyone supplement October to April

gov.uk/government/news/phe-...

Also read up on importance of magnesium and vitamin K2 Mk7 supplements when taking vitamin D

betterbones.com/bone-nutrit...

articles.mercola.com/sites/...

healthy-holistic-living.com...

sciencedaily.com/releases/2...

articles.mercola.com/sites/...

betterbones.com/bone-nutrit...

This article explains should discuss with specialists before taking any vitamin K if you take any blood thinning medication

drsinatra.com/vitamin-k2-su...

You also need folate, B12 and ferritin tested. Plus just testing TSH is completely inadequate, you need TSH, FT3 and FT4 ......thousands of patients forced to test privately

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