Latest ultrasound report

[Samy3]

Hi lovely ppl hope u all having a good weekend and enjoying the lovely weather this is my latest ultrasound report just for update I have graves disease diagnosed 3 years ago not on any thyroid medication since August 2016 struggling with symptoms and getting more issues with health BCS if thyroid never had any health issue before ...endo is not concern with this report saying ur blood results are normal he has referred me to ent don't know y but that's what I was told but he won't see me again my previous ultrasound s showed thyroiditis twice I only had one noudle last year now multi noudles I don't know what to do can any one explain this report to me my latest thyroid blood results in April was TSH. 2.16 (0.27....4.2). And T4 was 16(12...22)I'm taking all the vitamins with co factors ...I don't know where to go and what to do now I was hoping that he might do something but he snot concerned...thanks for all ur help

[SlowDragon Administrator]

Looking at previous posts you don't seem to have had TG antibodies tested. TPO now in range, means NHS refuses to test TG antibodies

You need to get FULL Thyroid and vitamin testing

For full Thyroid evaluation you need TSH, FT4 and FT3 plus both TPO and TG thyroid antibodies tested. Also extremely important to test vitamin D, folate, ferritin and B12

Recommended on here that all thyroid blood tests should ideally be done as early as possible in morning and fasting. This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip, best not mentioned to GP or phlebotomist)

Private tests are available. Thousands on here forced to do this as NHS often refuses to test FT3 or antibodies or all vitamins

thyroiduk.org.uk/tuk/testin...

Medichecks Thyroid plus ultra vitamin or Blue Horizon Thyroid plus eleven are the most popular choice. DIY finger prick test or option to pay extra for private blood draw. Both companies often have special offers, Medichecks usually have offers on Thursdays, Blue Horizon its more random

[Samy3 in reply to SlowDragon]

Thanks for ur reply slowdragon I got them done privately through medichecks year ago and my tg antibodies result was 49 or 46 and range was (0 ...115) ain January 2017 I was tested for too antibodies and mine were 55 range was (0...50)

[Samy3 in reply to Samy3]

My TPo antibodies through medichecks were 32 range was (0....34) I take my vitamin d 2500 IU a day with K2 ,..plus I take ferrous sulphate for ferritin BCS I bring to 80 and it goes down again if I don't supplement plus b12 with bcomplex so I'm doing my best but still noudles are keep developing and I'm symptomatic

[SlowDragon Administrator in reply to Samy3]

Ok - so TG antibodies appear negative and TPO very slightly raised - could be due to Graves

You need to retest vitamins annually as a minimum

When was vitamin D last tested?

If you are taking vitamin B complex, or any supplements containing biotin, remember to stop these 7 days before any blood tests, as biotin can falsely affect test results

endo.confex.com/endo/2016en...

endocrinenews.endocrine.org...

When were TSH, FT4 and FT3 all last tested together?

[Hay2016]

Hi Samy3. ENT were the guys I saw when I had nodules on my thyroid.

They would make any decisions on biopsy etc.

[Samy3 in reply to Hay2016]

Hi thanks for ur reply I have seen by ent in the past more than a year ago regarding my thyroid and ear pain they did not thought at that time that pain is BCS of thyroid but I did not have any noudles at that time now I'm hoping that they do something

[Greekchick]

Hi Samy,

I read the report on your nodules. So the good news is that except for one nodule, it confirms they are benign and small. The fact that you are getting more of them is suggestive of Graves’ disease, but without bloodwork I cannot say. The antibody readings are necessary. If your specialist will not order the tests, I strongly recommend you get private blood testing through Medichecks or Blue Horizons if it is within your means.

Since one of your nodules is suspicious, you should ask the ENT specialist for two things: you want an FNA biopsy with ultrasound of all the nodules so you can have some confirmation of the status of your nodules - this type of test is 98% accurate if done by a specialized practitioner. Be aware that sometimes a second biopsy may be needed if results are inconclusive.

Secondly, you need a nuclear uptake test. This is where they see how much iodine your thyroid absorbs, get more information about your nodules, and also the scan provides important information about how your thyroid is functioning. Both of these tests are necessary to fully assess your condition. A neck ultrasound alone does not reveal the necessary information. Blood work alone will also not give you the whole picture.

In addition, please get the previous copies of your older ultrasound report - you need to have your doctor see the changes and not just rely on personal reporting.

I also noticed your full name has not been blacked out on your report. You may want to repost with this not appearing here.

Hope this is helpful to you and wishing you all the best.

[Samy3 in reply to Greekchick]

Thank u so much for your such an I formative reply I do really appreciate when I was diagnosed my endo did TRAB test to confirm graves and it was positive my results were 1.3 range was upto 0-0.4another endo did last year in October again and my results were<0.4 so still borderline positive graves antibodies I do have the previous ultrasound report with me BCS it was done by my GP that's y I was keep asking this new endo that there s big change from the previous noudle it was only one 1cm one now I got 6 noudles and 2 of them are tr3 mildly suspicious but endo was not concerned I hope and pray that I do come across with a sensible ent specialist who pays attention to my results

[Greekchick in reply to Samy3]

Hi Samy,

Well at least you have your bloodwork confirmation. Now you need to get those nodules biopsied and your uptake test done - you want to know which nodules are cold or hot (cold nodules do not produce thyroixine and 15% of them are cancer - hot nodules are 98% benign and produce thyroxine) . Most nodules are not cancer in any case and suspicious does NOT mean cancer. Don’t be afraid to ask the specialist for these tests - they are essential for you to know what is going on.

So please don’t worry yet - easy to say - but I have been there. I have Graves and had a toxic multinodular goiter until 4 months ago when I had a TT. I have been down this path several times - and I know how stressful it is. I have had many biopsies and several nuclear scans - and it took me 25 years to get to where I am now.

The other good news is that most all thyroid conditions tend to move very slowly - so no matter what the results, there are usually no fast decisions to be made. You have plenty of time to think about your options.

In the meantime, you should try to manage your Graves. As you may know, it is an autoimmune disease. Try to eat foods that do not produce inflammation and have a healthy diet. Stress is the single largest trigger for the production of Graves antibodies. Reduction of stress improves your condition. If only I had known that years ago - I would have made some changes in my life that would have made a difference. So I pass that knowledge on to you and hope it helps.

Mindfulness meditation is one way to reduce stress and there are others too.

Wishing you all the best with this journey and sending you positive thoughts today. Good luck at the specialist and update us on the outcome.

[Samy3 in reply to Greekchick]

Bless u Green chick 25 years is such a long time ....where ever I can I try my best to learn since I got this disease diet I won't say that I have a best diet plan but it's not bad either I hardly eat processed food and hardly eat from outside everyday I cook myself for my family I have changed my pans to stainless steel pans so where ever I can I do try your words are giving me alot hope and courage so I will take your advice for my appointment with ENT regarding biopsy and uptake scan and will definitely update u what they say and what they will do once again thanks alot ...lots of love and ...prayers 😘😘for u ..samy

[Greekchick in reply to Samy3]

Dear Samy,

Thank you for these kind words! I am so glad that you have hope and you will find the courage as all of us have who are fellow Graves patients. If you have other questions, do post here or send me a PM and I will try to help.

There are so many good people on this forum who are going through the same thing as you - so read some of their posts and you will learn a great deal. I have learned so much from the people on this forum just from reading the posts and am so grateful for the support I have received when I was suffering after my surgery.

Sending you love 😘 and prayers 🙏🏻 from Canada! Good luck with everything.

[Samy3 in reply to Greekchick]

Once again thank u so much Greenchick for all your help near the appointment time I will contact u again regarding the questions I have to ask or treatment options and will update u any their answers aswell thank u so much for all your help do really appreciate 😘😘😘

[Greekchick]

😘