Hi. I don't think my post of last night sent ok possibly?
Only that I'm having a telephone Endo appointment today, first since last Aug
I want to get support if possible I don't know the guy so🤞🏻
My free thyroxine is nearly at top of range (so 20 and top is 22)
My ft3 STILL at same 4 (3 -6)
Tsh has reduced to 3.5
I've been taking levo 75 and 100 for three days only
Noticing my t4 result has shot up from14 to 20. since Feb!? (Same range at 22)
Is this to be expected please? Or is it relevant in some way pls
If these were your results with low t3 and high t4 with tsh 3.5 is it time to bring in t3
If I increase with levo it will go over range soon Can it be overage ? Is this not advisable (is this when it goes into Rt3)?
I should know, I've never been a researcher so really hard journey 🙈
Bed cortisol over range again, but had bucket loads of stress to contend with this year ongoing, I don't feel I want any more glandulars at the moment though, so looking at relax product and ashwandga product, meditation, walking and cream cakes
Any thoughts before I speak to endo much appreciated
I've sent him my results already via secretary and written my symptoms, as thought it may help 🤞🏻🤷♀️
Xx
If no one replies to this il be paranoid heightened 🙈🙃
🌞
Written by
Jeppy
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Bloods should be retested 6-8 weeks after constant dose. So if only just increased from 75mcg daily to 75mcg/100mcg alternate days, you will neeed FULL Thyroid and vitamin testing 6-8 weeks later
TSH is too high for someone on Levothyroxine
Aiming for TSH to be under 2
So will have to see if TSH drops after 6-8 weeks on new higher dose
Official NHS guidelines saying TSH should be between 0.2 and 2.0 when on Levothyroxine
(Many of us need TSH nearer 0.2 than 2.0 to feel well)
Dr Toft, past president of the British Thyroid Association and leading endocrinologist, states in Pulse Magazine,
"The appropriate dose of levothyroxine is that which restores euthyroidism and serum TSH to the lower part of the reference range - 0.2-0.5mU/l.
In this case, free thyroxine is likely to be in the upper part of its reference range or even slightly elevated – 18-22pmol/l.
Most patients will feel well in that circumstance. But some need a higher dose of levothyroxine to suppress serum TSH and then the serum-free T4 concentration will be elevated at around 24-28pmol/l.
This 'exogenous subclinical hyperthyroidism' is not dangerous as long as serum T3 is unequivocally normal – that is, serum total around T3 1.7nmol/l (reference range 1.0-2.2nmol/l)."
You can obtain a copy of the articles from Thyroid UK email print it and highlight question 6 to show your doctor please email Dionne at
It might do....but until you test after 6-8 weeks....you won't know if FT4 is actually high....you just got a false high testing after recent dose. Increase
Most people manage on high FT4
About 20% need to try adding T3, which is much more complicated and almost impossible to get on NHS and then need private blood tests etc etc
So FIRST step is to always try higher dose of Levothyroxine
But adding T3 is not something to leap at, until tried much easier option of higher dose Levothyroxine first
For example the maximum dose of Levothyroxine I can tolerate is 125mcg, but I need higher dose, so, a year after getting all vitamins optimal and 2 years after going strictly gluten free, (Hashimoto's and Heterozygous DIO2 gene) then T3 was prescribed by my endo as my FT3 remained too low despite high FT4
Vitamins- I always get full private Thyroid and vitamin testing 2-3 times a year via Medichecks. NHS refuses to test FT3 even though I am prescribed T3.
(That's crazy by anyone's standard surely)? So you are given something without assessing it along the way? Can't be right , il need to work on Acceptance as everything hits me in the forehead at the moment !!!
Where do they get the T3 from?
I've only had athlete foot , thanks for links , I'd have thought any fungal, bacterial thing is under the candida umbrella or maybe it can be external separately
Il have a read , I assumed fungal nails too
Quite nervously waiting for phone appointment as so want a positive outcome
If you don't mind. Il link in later if anything presents itself?
Emphasise that you have had enormous benefit going strictly gluten free
Plus Candida issue
Both suggest it's Hashimoto's
Endocrinologist will call it autoimmune thyroid disease and they often have little appreciation of gluten issue or the importance of vitamins being OPTIMAL
Noted in your profile you found improving vitamins very helpful
So good that he's happy for slow steady increase in dose
Levothyroxine contains iodine...and if you have Hashimoto's (obviously not 100% sure but likely with such good reaction to gluten free diet) it's best to avoid extra iodine. Though I suppose foods are ok.
Are you taking selenium supplements?
With Hashimoto's frequently adrenals are affected, so we simply can't start on full dose....common to need to increase very slowly
Do you know if and when you are euthroyd with the levo, do you still need as many vits supplemented? As I would imagine your body will absorb better naturally again (hoping)🙏🏻
I'm maybe OCD on it but I take many at the moment to get by - I read stuff and fall for it basically
Here goes....
C &. D B complex. B12 (How much b12 should you take daily to keep levels up, probably varies?)
Folate, Selenium (or thyroid converter) zinc, magnesium, q10 (I may replace with a good multi mineral but read on here its not as good)
I take collegan , fish oil. Holy basil, thinking of ashwandga (for adrenals)
Yes. Well expect is also the case for most to be kind to the body
He thinks il be fine on 100 and said it would come under a two which is all he is looking to do
How can they vary so much!? He said 0.5 was too low
I really don't know,if I am hashi as he doesn't think so,
I need to explain my gut was not a problem to me as such but have felt better since gf (I used keniesiologist help at one point and he tested me for leaky gut which I've healed). But I'd imagine many older people have some leaky going on, But may be wrong
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