Thyroid ultra sound

[Jlj74]

Hi I was diagnosed with under active thyroid couple of months ago after going to doctors several times and been told it was viral and I. would be fine even though my symptoms of fatigue hair loss (all over) weight gain swollen puffy face and swollen tongue even drooling when asleep which I don't normally do finally got blood tests done came back that my TSH was 149 and T4 2.6 started me on 100 MCG levo .Had an ultra sound on Tuesday and they told me my thyroid had burnt out? also several nodules anyone know what this all means please many thanks

[Greekchick]

Hi Jli,

I’m so sorry to hear you are feeling so ill.

Without complete bloodwork that includes ranges and antibody tests it is hard to tell what’s happening. Please see posts of SlowDragon as she lists all the bloods you need to post here. I’m no expert but it sounds like you are extremely hypothyroid based on the TSH and T4. There are people on the forum much more expert than I to comment here, but at least you can check out SlowDragon for what will help them to advise you.

I hope you feel better soon. All the best.

[Jlj74 in reply to Greekchick]

Thank you for your reply I am on the mend! Hopefully

[Greekchick]

Great news! So glad to hear that .

[radd]

Jlj74,

It sounds like you have Hashimotos. This is an autoimmune condition where the formation of thyroid peroxidase (TPO) and/or thyroglobulin antibodies (TGAb) attack and eventually destroy the thyroid gland, resulting in a decrease in thyroid hormone production. Have you had thyroid antibodies TPOAb & TGAb tested ?

Thyroid nodules refer to an abnormal growth of thyroid cells and can be caused by Hashi. Most are harmless and if ceasing to cause any problems they are usually left alone.I have Hashimotos and had a multi nodular goitre when diagnosed. I was scanned and offered an FNA to determine health of nodules. With thyroid hormone replacement meds, goitre eventually shrank.

SeasideSusie gave you loads of good advice re meds, tests, deficiencies, etc

A good read is "The Root Cause" by Isabella Wentz. I am glad to hear you are feeling better.

.

Hashimotos

thyroiduk.org.uk/tuk/about_...

[Jlj74 in reply to radd]

Thank you

[SlowDragon Administrator]

About 90% of primary hypothyroidism in Uk is due to autoimmune thyroid disease also called Hashimoto's, diagnosed by high thyroid antibodies and/or ultrasound scan showing granulated or nodular Thyroid

Bloods should be retested 6-8 weeks after each dose increase in Levothyroxine (or brand change in Levothyroxine too)

The aim of Levothyroxine is to increase the dose slowly in 25mcg steps upwards until TSH is under 2 (many need TSH significantly under one) and most important is that FT4 in top third of range and FT3 at least half way in range

For full Thyroid evaluation you need TSH, FT4 and FT3 plus both TPO and TG thyroid antibodies tested. Also extremely important to test vitamin D, folate, ferritin and B12

Low vitamin levels are extremely common, especially if Thyroid antibodies are raised

Has GP tested antibodies and vitamins yet? If not, request they do do

Recommended on here that all thyroid blood tests should ideally be done as early as possible in morning and fasting. This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip, best not mentioned to GP or phlebotomist)

Last Levothyroxine dose should be 24 hours prior to test, (taking delayed dose immediately after blood draw).

Private tests are available. Thousands on here forced to do this as NHS often refuses to test FT3 or antibodies or all vitamins

thyroiduk.org.uk/tuk/testin...

Medichecks Thyroid plus ultra vitamin or Blue Horizon Thyroid plus eleven are the most popular choice. DIY finger prick test or option to pay extra for private blood draw. Both companies often have special offers, Medichecks usually have offers on Thursdays, Blue Horizon its more random

If antibodies are high this is Hashimoto's, (also known by medics here in UK more commonly as autoimmune thyroid disease).

Low vitamins are especially common with Hashimoto's. Food intolerances are very common too, especially gluten. So it's important to get TPO and TG thyroid antibodies tested at least once .

Link about thyroid blood tests

thyroiduk.org/tuk/testing/t...

Link about antibodies and Hashimoto's

thyroiduk.org.uk/tuk/about_...

thyroiduk.org.uk/tuk/about_...

List of hypothyroid symptoms

thyroiduk.org.uk/tuk/about_...

All four vitamins need to be regularly tested and frequently need supplementing to maintain optimal levels

NHS guidelines on Levothyroxine including that most patients eventually need somewhere between 100mcg and 200mcg Levothyroxine.

nhs.uk/medicines/levothyrox...

Also what foods to avoid (eg recommended to avoid calcium rich foods at least four hours from taking Levo)

[Jlj74]

Thank you will ask doctors for my print out of blood results... And yes vitamin b12 defiency