Prescription of NDT: Just a quick post is anyone... - Thyroid UK

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Prescription of NDT

Loutraki56 profile image
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Just a quick post is anyone receiving NDT on the NHS please that is prescribed by a local Endocrinologist and funded by their CCG. Thanks.

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Loutraki56
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MMaud profile image
MMaud

Loutraki, I'll be interested to read the responses to this thread. Are you having issues in your area?

Loutraki56 profile image
Loutraki56 in reply to MMaud

Yes, for one lady in particular, that is in need of this drug due to not being able to tolerate Levothyroxine.

MMaud profile image
MMaud in reply to Loutraki56

is that lady yourself, or someone else?

Loutraki56 profile image
Loutraki56 in reply to MMaud

No it’s someone else.

MMaud profile image
MMaud

Loutraki - You could always look up various CCG's policies. This is mine:

leicestershire.formulary.co...

Loutraki56 profile image
Loutraki56 in reply to MMaud

Ok thanks I will check, I already know that T3 is on our CCGs Red List and they won’t prescribe unless proven is necessary. Will check for NDT.

Further info - It is not really necessary to look up each individual CCG to establish whether they can prescribe it. Each County seems to have a single organisation for all the CCG's in that County. Every CCG in each County seems to follow the advice of that organisation regarding NDT.

In Merseyside that organisation is the Panmersey Area Prescribing Committee. BLACKLIST.

In Lancashire it is the Lancashire Medicines Management Group. BLACKLIST.

Don't know the names of any others.

Alternatively some CCG's may follow the Endocrinology Society, the BTA or SPS. It's a bit like the Woolworths pick 'n' mix stall where the CCG can seemingly choose whichever reasons it fancies from whichever organisation is flavour of the day to justify its decision.

Panmersey actually deleted several pieces of evidence from their 2017 recommendation when I asked them to justify their reasons for the blacklisting. The document is being updated in June 2019 and I have once again queried the remaining reasons for their continued blacklisting, providing them with my reasons as to why I believe what they are now saying is a load of UTTER B*%%*!^S

Loutraki56 profile image
Loutraki56 in reply to

Thanks for the information!

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