As your FT4 result is ABOVE range this suggests poor conversion or Hashimoto's
TSH obviously very high
Either test was incorrect or low vitamins or thyroid antibodies are affecting result
Personally I don't think your GP should have put dose up, without repeating testing
You need FULL Thyroid and vitamin testing ASAP
For full Thyroid evaluation you need TSH, FT4 and FT3 plus both TPO and TG thyroid antibodies tested. Also extremely important to test vitamin D, folate, ferritin and B12
Low vitamin levels are extremely common, especially if Thyroid antibodies are raised
Recommended on here that all thyroid blood tests should ideally be done as early as possible in morning and fasting. Do not take Levothyroxine dose in the 24 hours prior to test, delay and take immediately after blood draw. This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip, best not mentioned to GP or phlebotomist)
Is this how you do your tests?
Private tests are available. Thousands on here forced to do this as NHS often refuses to test FT3 or antibodies or all vitamins
Medichecks Thyroid plus ultra vitamin or Blue Horizon Thyroid plus eleven are the most popular choice. DIY finger prick test or option to pay extra for private blood draw. Both companies often have special offers, Medichecks usually have offers on Thursdays, Blue Horizon its more random
If antibodies are high this is Hashimoto's, (also known by medics here in UK more commonly as autoimmune thyroid disease).
About 90% of all hypothyroidism in Uk is due to Hashimoto's.
Low vitamins are especially common with Hashimoto's. Food intolerances are very common too, especially gluten.
So it's important to get TPO and TG thyroid antibodies tested at least once .
Thank you so much for your response and so quickly. I will go back to my GP and discuss with her. She was going to write to the endocrinologist for advice so it will be interesting to see what they say. If no progress I will go ahead and have private tests done. At which point I may need more help interpreting results.
Sadly your results illustrate the need for routine testing including FT3. I doubt that the Endo will give advice without the full results so it would be a positive if she wanted to see you so that the full testing can be done. If she doesn't do that I'd be cautious about seeing her in the future.
Thank you for your thoughts. A similar result occurred in 2010 and endocrinologist was written to by GP. Increase in thyroxine seemed to improve things. I have never actually seen a consultant perhaps if repeated test shows no change it’s time I was more forceful and ask to see one.
At least I will be more well informed with all the advice I’ve received here.
One possibility is interference with the test. diogenes mentioned that on your previous thread.
Another is a pituitary problem which is pumping out excess TSH. The thyroid is responding by releasing more T4, but the pituitary is not reducing TSH as expected.
You definitely need repeat tests and, depending on them, to see an endocrinologist.
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