Bradycardia (sometimes lower than 50) (Bradyspnea possibly too)
Indigestion
Chronic Burping
Meds
Levo 125mg
Supplements
Vitamin D
Fish Oil
Selenium
Vitamin C
Iron
Tests
ECG
24 ECG
Endoscopies
Nasoendoscopies
Spirometry
EKG
Manometry
24 hour endoscopy
Problem
Breathlessness, chronic burping, heart worries.
I am on a paelo diet too. Not sure what else can be done to stop this. Worried about my heart but the tests above all come out normal and the doctors say its fine.
Dad has hashimotos an diabetes and had a heart attack. Not sure what to do. This all started with indigestion.
My TSH was 5.6 two weeks ago but I increased the dosage so it should be coming down. This is a pain in the arse.
I am sure you all can understand but I have a life I'd like to live instead of constantly going through set back after set back after set back. Has anyone else experienced symptoms like this? Has anyone solved the problem?
Best wishes to all of you.
Written by
DressingGown
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Your symptoms could all be attributed to low thyroid hormone. How long have you been medicating Levothyroxine ?
Have you had T4 & T3 thyroid hormone & TPOAb & TGAb thyroid antibodies levels tested ?
You are supplementing Vit D and iron but have you had these tested ? Also Folate & Vit B12 are commonly deficient in people with hypothyroidism ? If you post any test results complete with ranges (numbers in brackets), members will comment.
Thank you for your feedback. I am new to this so thanks for helping me to become accustomed.
I was diagnosed in March 2017 but this was after a few years of my body just breaking down and me going through test after test. I was put on 25mg levothyroxine from then and this has slowly increased up to the 125mg today.
I am subclinical as per the most recent test a new weeks ago.
TSH: 5.6
FT4: Normal
FT3: Normal (but lower than FT4)
Antibodies: Over TPOAb 1000 and TGOAb over 600.
I wish I could tell you more but this is the information I received.
Vitamin D was found to be insufficient (not deficient, just insufficient) in September 2017 and since then I have been supplementing.
I also tested Vitamin B and Iron. Change of country means I don’t have the data on me but they were both normal. However, iron was ‘just’ within range (close to insufficient).
All our bodies eventually break down without sufficient thyroid hormone ... slowly and insidiously gaining more ailments , becoming stuck in a chronic state of immune system overload, adrenal insufficiency, gut dysbiosis & impaired digestion, inflammation, etc, etc ..... but recovery is possible with optimal nutrients, meds, etc .....
For many thyroid hormone replacement requires optimal iron & nutrients, to be tolerated. The iron is especially important & most aim for ferritin levels of about half way through range.
Thyroid & adrenals glands work closely together and it is good your Levo was increased slowly as this lessens the strain on compromised adrenals that can struggle with a sudden increase in metabolism.
The aim of Levothyroxine is to bring about a euthyroid state and many benefit with FT4 levels in the upper quartile of range. It is also useful to know exact FT3 results to assess if you are converting enough.
Your antibody levels are way too high and can cause inflammation in the body which influences how thyroid hormone is used, doing horrible things like suppressing the hypothalamus-pituitary-thyroid (HPT) axis, or decreasing both the number and sensitivity of thyroid hormone receptors.
Many members have found a gluten free diet has helped to quell inflammation and reduce antibody levels.
I have gone gluten free for some time now and am now looking into other food sensitivities as quitting gluten, dairy, nightshades, caffeine, sugar, alcohol and carbohydrates have done nothing to resolve the particular symptom of slow breathing, pulse, chronic burping and nasal inflammation.
I will look into my nutrient intake and keep you and everyone else updated if I find a cause. Thanks again.
The last time I retested was an aeon ago but I was back in range with 1000iu. I hadn't realized that at all. Thank you for letting me know! I'll retest my levels as soon as I find doctor that will authorize the tests.
After reading through your replies to radd, I have to say that there is no such thing as 'normal'. All it means, in doctor-speak, is 'in-range'. But, given how vast some of the ranges are, 'in-range' is often not good enough. They need to be in the right place in the range. So, you should never just accept when a doctor says 'normal', but ask for the numbers - the exact results and ranges. Better still, ask for a print-out, because I know how they can fudge these things - doctors are expert fudgers!
Do you know what your ferritin level was? Low, presumably, as you're taking iron. Low ferritin can make you breathless, as can low T3 and low B12. Has your ferritin level risen at all since you've been supplementing with iron? Do you take it with at least 1000 mg vit C to help absorption? Do you take it at least 2 hours away from everything else? The more detail you can give, the better.
But, I have to say, you might never find the cause. I have been breathless most of my life, and getting worse. All my ducks are in a row, so I've no idea why. I take N-Acetyl-Cysteine, and that helps a bit. But, there's no way I could run, or climb a mountain, just haven't got the puff. Doctors are useless, they have no idea, nor do they care. They've done endless tests on my heart, to no avail. It's just something I've had to learn to live with, I'm afraid.
thank you for your reply. There is a lot of invaluable information here.
I hadn't known to leave it two hours before I ingest anything else after takibg Iron. I do however use vitamin C to assist absorption. I will look into B12 and ferritin. And also I was wondering about N-Acetyl-Cystein as well so I guess I will look into it. I am just reticent about taking things without evidence that I need it. Though I completely understand what you mean about ranges. These are cut off points discerned from group studies based upon the assumption that we all need about the same amount. Normal is an accurate description but it does not mean optimal. I have found I am better when I am close to over the limit as opposed to under.
I am sorry to hear you have walked such a long road with this. I only hope that because we all talk to each other, I might stumble upon something that will help you too. Anything that works for me, I will post here or some similarly entitled post.
"I am subclinical as per the most recent test a new weeks ago."
So was I so-called "Subclinical" (HA!!!) They seem to think anything within the official ranges means you are OK. How they can call it that when you have many only too "Clinical" symptoms I don't know.
You can get some really good advice here, as well as moral support.
Abut supplements, the only thing you can take with Levothyroxine is vitamin C. I finally have it down to a fine art, Levo in a little pill box with the day of the week, together with a Vit C chewable tablet on bedside table. Can take it first thing in the morning (or sooner if I wake up in the night for the loo) before even waking up properly. You have to be careful not to choke on the vit C of course, especially if you sleep on your back. Iron tablets should be taken with vit C too. It helps absorption. Only problem is it's best not to take iron or anything with calcium in within 4 hours of Levo, or 2 hours from iron itself. Which might make cereal for breakfast a no-no.
I’ve had those symptoms repeatedly when undertreated. May be useful to get print outs of your test results and post here. I’m not medically qualified, but in your position I would make a slight increase to dose to see if it helped. You have to be assertive and proactive with thyroid problems, even though symptoms include lethargy and not feeling at all proactive (!) In my experience doctors seldom suggest an increase even when it’s necessary. So my way of solving these problems was to manage the dose myself and keep doctor informed. Good luck
How utterly ridiculous this situation is. You either fit in the box and can be helped or you don't and you are on your own. With so many of us are left to it by ourselves it is a wonder why progress is managing the disease is so slow.
HR was 40-42 for many years and now up to 52-54 consistently.
I tried a load of combinations of diet and supplements and ultimately accepted that I needed - coffee (including decaf) and alcohol free and of all the supplements black cumin seed oil, D, E, selenium and magnesium citrate were all essential. If I was only allowed to take one supplement magnesium 500 per day dose is my choice.
There is much discussion over gluten and dairy and whether these hinder health - I have found this partly true but nothing on a scale compared to the impact of cofffee/alcohol.
Good luck - it is massively rewarding when you can turn the corner ...
Danielj1 - you might just have made all the difference. I have magnesium supplements in the D compound I take but nothing as voluminous as yours so I think that may be well worth it.
It would be a happy old day for me if I could have coffee again so that is nice to hear. Also I never had black cumin see oil, so I'll look into that.
I found that my HR goes up when my TSH is 'within range' but it is never back to a rate with which I'd be comfortable.
I'll continue to look into it too. If I find something that helps, I'll let you know.
I have done the whole gluten and dairy free stuff. It helps but to the extent that it would help anyone who eats more healthy food. It does nothing for the heart except lower cholesterol, so your comment was really helpful. Thank you very much.
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