Thank you!!: Just joined. Have Hashimoto and no... - Thyroid UK

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Thank you!!

endofdays profile image
10 Replies

Just joined. Have Hashimoto and no joy for 8yrs on levothyroxine. About to embark on a journey of healing my gut as that what all the functional doctors say and already quitting gluten for a couple of days has shown me it's the right path. Next is getting rid of dairy and doing a liver cleanse. Continued sweats, hair loss, brittle nails, bleeding gums, hip and leg pain, insomnia and the list goes on. Think it's time also to try tirosint or armour thyroid cos I've never felt well on levothyroxine!! Great to join this and read all your thoughts and experiences on here. Thank you all

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endofdays
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greygoose profile image
greygoose

Hi endofdays, welcome to the forum.

Tirosint is levo. Just another brand name. Did you mean Tiromel (T3)? :)

endofdays profile image
endofdays in reply togreygoose

Yeah. I just think, as far as I know,vt's got less inactive ingredients than levo?

greygoose profile image
greygoose in reply toendofdays

Sorry, you've completely lost me, now. What is vt? And, by 'inactive ingredients' do you mean fillers? Levo is short for levothyroxine, the active ingredient, it's T4. It's not a brand. Tirosint is a brand name, but it's still levo.

endofdays profile image
endofdays in reply togreygoose

Haha sorry, my typo!! I meant fillers yes and vt's was meant to be tirosint lol. 😊

SlowDragon profile image
SlowDragonAdministrator

You may find that getting vitamins optimal, gluten free that Levothyroxine then works very well.

Or you may just need a small dose of T3 in addition

First step is to get full Thyroid and vitamin testing

Get vitamins optimal

Then retest thyroid

Only ever make one change at a time or add one supplement at a time and wait at least ten days to assess or you have no idea which change is helping or not

endofdays profile image
endofdays in reply toSlowDragon

Thanks for that, you're right. I guess then it's gotta be functional Docs to do that testing it does NHS do that?

SlowDragon profile image
SlowDragonAdministrator in reply toendofdays

For full Thyroid evaluation you need TSH, FT4, FT3 plus TPO and TG thyroid antibodies and also very important to test vitamin D, folate, ferritin and B12

Private tests are available. Thousands on here forced to do this as NHS often refuses to test FT3 or antibodies or vitamins

thyroiduk.org.uk/tuk/testin...

Medichecks Thyroid plus ultra vitamin or Blue Horizon Thyroid plus eleven are the most popular choice. DIY finger prick test or option to pay extra for private blood draw. Both companies often have money off offers.

Medichecks do offers on Thursdays

All thyroid tests should ideally be done as early as possible in morning and fasting. When on Levothyroxine, take last dose 24 hours prior to test, and take next dose straight after test. This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip, GP will be unaware)

If also on T3, or on NDT (Armour) make sure to take last dose exactly 12 hours prior to test

endofdays profile image
endofdays in reply toSlowDragon

Brilliant thank you so much for info!!

danym profile image
danym in reply toendofdays

did you find something that worked?

endofdays profile image
endofdays in reply todanym

Hi, no just plodding along until I can afford to see a functional doctor. Seen 2 different endos along this path and both showed no interest in digging in the deep stuff so I just don't go there anymore. The lichen sclerosis seems worse at moment but by God's grace I am doing ok. Thank you so much. Hope you are well?

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