NDT NHS

[Lei9g]

Is it true that the NHS will not fund NDT at all?

It’s seams illogical if a person can not get on with Levothyroxin and does well on NDT.

[greygoose]

The NHS doesn't care about people doing well. It only cares about cost. And levo is the cheapest.

[Lei9g in reply to greygoose]

I hear you loud and clear. I’ve had to see a private endocrinologist and he has given me a script for efra thyroyd. Gonna cost me a fortune.

[greygoose in reply to Lei9g]

I don't doubt it. It's an absolute scandal!

[OzoneGirl in reply to Lei9g]

At least ERFA Thyroid is much cheaper than T3!

I get on very well with it, but pay for it myself on a Private 'Script'.

[Lei9g in reply to OzoneGirl]

I’m paying for it myself. £73 for 100 tabs. What are you paying ?

[Jazzw]

The NHS can fund it. They can do it on a “named patient” basis. But they usually won’t.

That said, prescription records held on a national register that I’ve seen Helvella post about occasionally show that some GP practices do fund NDT prescriptions.

Not many but some...

[Lei9g in reply to Jazzw]

Really? I’ll see how I get on with this prescription and ask my gp when I next see him. He seams open to try new things. Fingers crossed.

[Jazzw in reply to Lei9g]

You never know. If you don’t ask, and all that...

This is how it works: thyroiduk.org/tuk/treatment...

[MaisieGray in reply to Lei9g]

"He seems open to new things" - well it's not at all new of course. Patients were first given desiccated animal thyroid in the late 1800's. It just went out of medical favour as it were, when thyroxine was synthesized and marketed as the solution to failing/absent thyroid glands.

[JUDYMSHAW]

I pay about £1 a tablet and I really don’t think it’s fair

[Lei9g in reply to JUDYMSHAW]

It’s no fair at all. I was prescribed 60mg of Erfa thyroid. I am paying 73 pence per tab. Gonna push my go to so if I can have a named patient script for them like jazzw said above.