NDT should be prescribed on the NHS.

[Starsw]

Petition to request NDT to be licenced and prescribe by the NHS

you.38degrees.org.uk/petiti...

Please have a look.

[Blackpanther46]

I’ve signed x

[SeasideSusie Remembering]

Starsw

That petition was started 3 years ago. Unfortunately I doubt it's going to achieve anything if it's taken that long to muster just over 2,000 signatures. Not being negative, just realistic I'm afraid.

[Starsw in reply to SeasideSusie]

Yes i know i have noticed but at least we can try. 🙂

[MichelleHarris]

Signed. I didnt know about it so thanks for posting x

[Sunflower_Blue]

I have signed this and shared to Facebook so I hope it gets some more signatures. Thankyou for flagging this up .

[grumpyold]

I have signed too. I agree with Seaside Susie, but better to sign, than not. One lives in hope😂.

[Muffy]

My daughter has been prescribed NDT on the NHS for many years.

[MichelleHarris in reply to Muffy]

Thats great! My Endo knows I cant tolerate Levo. He says it caused me a Sjogrens flare and Oesinophillic Oesohagitis. But I have to spend hundreds of pounds on NDT and LDN. He and Sjogrens specialist say they would get struck off if they prescribed me NDT. I feel very poorly and my savings diminish every month. I feel totally let down by the NHS x

[penny in reply to MichelleHarris]

I have read that vitamin D has been used to treat Sjorgen’s.

[MichelleHarris in reply to penny]

Oh thats good then because I take the Better You Vit D spray every day x

[penny in reply to MichelleHarris]

I am unable to mention names on this forum but we are talking about up to and exceeding 100,000iu of vitamin D per day. This has to be done under the supervision of a doctor with frequent blood tests.

[MichelleHarris in reply to penny]

Really! How interesting! I’ll pm you. Thats a toxic dose isn’t it ? x

[Carys21]

signed, I'll try and share it on some of the hypo forums on facebook too

[siddooo1]

Signed a couple of months ago x

[wisewoman108]

Signed!

[Starsw]

Thank you for signing try to keep it going as much as you can any way you can

[tattybogle]

done x

[Crwbin1]

Signed and shared.

[Kisca]

Signed and shared x

[nightingale-56]

Signed and shared as I know that NDT is the medication for me, but so hard to get.

[lucylocks]

Signed.

[Lora7again]

I asked my local MP about this and here is the thread about the reply I got.

healthunlocked.com/thyroidu...

[Starsw in reply to Lora7again]

I have read the reply he does not seem to be that interested really. I remember watching a woman MP intervention in the house of common about the way UTI are diagnosed and how women are denied antibiotic because test are saying they do not have an infection even if test are around 30% false negative. Well she was brave i think she is a doctor but most MPs had left especially the men.

How strange also that most endos department are full of diabetes specialists but no-one for thyroid disease, is it only my impression but as more men than women suffer from diabetes they seem to get a better care Thyroid disease is mainly a female issue and there are hardly any specialists for us.

Saying this I have recently changed my GP for another GP in the same surgery and he is on board with me taking NDT and experimenting on Glandular. In any case I have on my medical record "Drugs - partial non-compliance (XM1X " ( what a naughty girl! ) so I suppose if something bad happen to me it will be my fault. How unfair that we are left to self medicate for an issue so fundamental as Thyroid replacement therapy. 😞

[Lora7again]

My MP is actually a woman in her 40s not that I would wish bad health on her but I wonder if she would have been more helpful if she suffered from thyroid disease.Also Sarah Vine who is married to Michael Gove is prescribed NDT.

[Starsw in reply to Lora7again]

Yes i think if one has not experienced the low of hypothyroidism they cannot really grasp how it is so essential for everyday functionning. Maybe Mr Gove could understand it better if his wife has it. The bottom line is a good proportion of patients need NDT or added T3 to feel well and they are denied well being it is like deliberately telling them we don't care if you suffer we don't beleive you. The finding of the defective gene DIO2 was in 2009 still very little has changed in the NHS care if anything it has gone worse. Surely a trial of T3 first then NDT for people with hypothyroidism who still feel unwell while on T4 should become the standard of care. 11 years on Levo had made me so ill (i had vitamin D deficiency which was eventually addressed) my GP ran so many tests I was on on lansoprazol (still need it occasionally) Amitriptyline, Tramadol, some courses of cocodamol steroids and countless investigations how is that a saving for the NHS and a health and care excellence! After 3 months of Thyroid S most of my symptoms had gone or were greatly diminished. I suppose for the NHS it is a win win we pay for our medication and we feel better for it. What about the people who don't have the mean the education or are so unwell that they cannot jump through all the loops. I suggest a campaign to have NICE to remove the E from their name because "excellence" as far as patient with thyroid diseases are concern it is not. 😔

[Lora7again in reply to Starsw]

I have tweeted to Sarah Vine about her using Armour whereas we have to buy ours from Thailand and she completely ignored me. I don't think the government has any interest in thyroid disease sufferers.

[Starsw in reply to Lora7again]

Unfortunately it seems that you are right like they have no interest in the well being of women in general and in middle age women more specifically. 😞

[Lora7again in reply to Starsw]

I think if more men had this disease they would do more to help.

[hypoandmad]

Signed!

[Starsw in reply to hypoandmad]

Good Thank you

[TSH110]

Signed it, but numbers are still low 😞

[pennyannie in reply to TSH110]

And here's another one so " less low " now,

[TSH110]

“When bad men combine, the good must associate; else they will fall, one by one, an unpitied sacrifice in a contemptible struggle.”

[FancyPants54]

I've added my signature and signed and shared on FB and Twitter. All we can do is keep asking people. Most hypo patients have very little understanding of their condition and the medication let along the general public. It won't get signatures unless we ask for them.