NDT on the NHS

[Lei9g]

Hi all. Do any of you guys get your NDT through the nhs? I currently pay privately for mine from my endo.

[Aurealis]

No I don’t, same as you.

[brighter84]

I'm pretty sure it's impossible. It's hard enough to get them to prescribe T3

[Just-keep-going in reply to brighter84]

It is possible. It's completely legal to be prescribed NDT on the NHS but you have to be Prescribed on a 'named patient basis'. It is difficult to find a doctor who will do it though even though it's legal. Do you mind me asking what doctor you see Lei9g? I am currently looking for one that acknowledges the significance of Reverse T3. Thanks!

[Lei9g in reply to Just-keep-going]

I am in Liverpool. I see an endo call professor Frank joeseph at spire Liverpool. He prescribed Erfa thyroid for me. Costs me £73 for 100 tabs.

[C70rol in reply to Lei9g]

Hello Lei9g.

Yes I am prescribed NDT on the NHS !

My endo said that it was quite clear that I was not converting levo from my test results and symptoms, gene test results etc, so he wrote to my doc saying that I should have NDT . However my doc refused as it was an unlicensed medication and told me to find another surgery. So that I did. (That was a difficult time).

I now have a very good doctor who believes in "treating the patient to make them well ?" Apparently he was treating patients on NDT before the drug companies were formed, and NDT was the only product for the thyroid !

However the other doctors in the practise don't agree with what he's doing, So I hope he doesn't retire too soon !

[Furface]

I get mine through private Dr as couldn't find NHS dr to prescribe.

[MaisieGray]

Hidden To what NICE guidance do you refer? I'm not aware that there has been new NICE guidance pertaining to the treatment of hypothyroidism, that has passed me by - although in any case, it is of course guidance and not regulation. Drs remain free, subject to criteria, to prescribe what they believe is necessary to treat the patient, and NICE can't stop that. What is certainly happening of course, is CCGs blacklisting or red lighting T3 in particular, at a local level in direct contravention of NHSEngland's national statements to the contrary - but again, GPs retain their right (in principle at least) to prescribe as they see fit; it's just that some are caving in to CCG pressure not to. My Endo was telling me that the same CCG prescribing bullying is going on across all specialities, not just endocrinology and certainly not just thyroid. But if you have a link to the NICE guidance to which you refer, I'd welcome seeing it.