? NDT on NHS Px

[19aglow49]

Heterozygous Varient Genotype TA

I have an appointment with my endo in a few weeks. As I have a genetic fault is it possible to get NDT in an NHS Px?

[SlowDragon Administrator]

Much more common (and more flexible on dose adjustment ) to be prescribed T3 alongside levothyroxine

Recent post re Dio2 gene

healthunlocked.com/thyroidu...

But it’s still a post code lottery

Is you endo one from Thyroid UK recommended list of endocrinologists who will prescribe T3?

[19aglow49 in reply to SlowDragon]

I don’t know

[SlowDragon Administrator in reply to 19aglow49]

Email Dionne at Thyroid UK for list of recommend thyroid specialist endocrinologists who will prescribe T3...some are NHS

[e-mail]

NHS England Liothyronine guidelines July 2019 clearly state on page 13 that TSH should be between 0.4-1.5 when treated with just Levothyroxine

Note that it says test should be in morning BEFORE taking Levo thyroxine

Also to test vitamin D, folate, B12 and ferritin

sps.nhs.uk/wp-content/uploa...

Prescription rates of CCG areas in England

openprescribing.net/analyse...

[SlowDragon Administrator]

As you have Hashimoto’s it’s important to regularly retest vitamin D, folate, ferritin and B12. These are frequently low and need improving to good levels BEFORE trialing T3

Initial T3 trial must be via NHS endo and prescribed by hospital pharmacy. Assuming trial goes well, Endo writes to your GP to take over ongoing care. You may need individual funding request via endo

[19aglow49 in reply to SlowDragon]

Thanks for the info