Help with results please : Hi, i posted recently... - Thyroid UK

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Help with results please

norwood1
norwood1

Hi, i posted recently about palpitations anxiety etc so I asked my GP to re-test my Thyroid and also T3 as this was not done in January 2018. He did request it on the form and I saw it myself however, the results have come back and no T3 which he did say would probably happen.

Results are: Serum TSH level

0.29 mIU/L

0.3 - 5.5

Abnormal

13 Sep 2018

Serum free T4 level

18.7 pmol/L

9 - 25

Normal

I have received a letter from my GP requesting I make an appointment. Does this now mean I have gone overactive after being under for nearly 10 years.

Last results were

Serum TSH level

0.88 mIU/L

0.3 - 5.5

Normal

10 Jan 2018

Serum free T4 level

18.5 pmol/L

9 - 25

Normal

Any advice would be very much appreciated. Thank you.

8 Replies
oldestnewest

healthunlocked.com/thyroidu...

The above link takes you to your last Post/Thread. So I think you need to have the Private Testing done as suggested in the above link. You need anti-bodies testing - and if they are positive you can have irregular and fluctuating results - swinging from seemingly Hypo to Hyper.

The Levo you are taking is T4 - a storage hormone doing very little in the body. It needs to convert into the ACTIVE thyroid hormone T3 - so without that result it is impossible for you or us to see WIGO - what is going on ! if the FT3 result is over range it could mean you are over-medicated - but not Hyper !

You also need testing for B12 - Folate - Ferritin - VitD. All need to be OPTIMAl and not bumping along the bottom of the range - for your thyroid hormones to work well in the body. Having them at a good level can make all the difference. Maybe your Ferritin and Serum Iron are low - this can cause palpitations.

Without the FULL testing and all the vitamins and minerals you really only have half the story. Are you taking any other medications ? - or supplements ?

I am not a Medic - jsut a Hashimotos gal with a B12 issue - and Crohns ... :-)

norwood1
norwood1 in reply to Marz

Thank you so much I appreciate your advice in simple terms very much as seeing GP this morning. I have ulcerative colitis and have B12 injections 3 monthly. I get really confused with the thyroid and find it hard to understand which is why i probably repeat myself often. I agree and will have the private testing done in the last link but was waiting to see these results first. My Vit D and Ferritin are normal but always in the bottom range going to ask about these today. I take omega 3 6 9, calcium, magnesium and folic acid. Thank you so much again and hope you are keeping ok :)

Marz
Marz in reply to norwood1

VitD needs to be around 100 and Ferritin around 70 for things to work well in the body. If you are taking B12 injections - it is suggested also to take Folic Acid/folate as the B12 and Folate work together in the body in an important way. Do obtain copies of all your results - with ranges - they are legally YOURS !

I self-inject B12 weekly and take a GOOD B complex along with all the other supps that make me rattle ! B12 is absorbed/metabolised in the Terminal Ileum ( I do not have one ) hence with UC you may need more B12 ...

Good Luck with the Doc and report back with the news :-)

norwood1
norwood1 in reply to Marz

I just typed a reply and it was blocked, so try again !! Saw GP this morning. Lab will not test T3, my vitamin levels are within the normal range so I will order private testing today. I like my GP very much but the other GP in the surgery is more thorough but he was off today so I picked the wrong day I think to go. Anyway will post private results when received for some advice that I can take with me. So frustrating !!

Wishing you all the very best

Ann

Marz
Marz in reply to norwood1

Thanks for the update. Glad you are moving forward. When you have your results - I would suggest starting with a new post so more people see them ... and can offer their support. Those results in the Normal range ? - you can still ask for those results.

SlowDragon
SlowDragonAdministrator

Just testing TSH and FT4 is completely inadequate

You need FT3, antibodies and vitamins tested

In previous post I asked if you had had recent change in brand of Levothyroxine?

Many people need to always have the same brand and Teva brand upsets many people

norwood1
norwood1 in reply to SlowDragon

I just typed a reply and it was blocked!! Anyway try again.. Saw GP this morning, Lab will not test T3. He said results ok and I am borderline so no need to test further. My vitamin levels are in normal range etc. I like my GP very much but at times he is frustrating and I dont think he knows how to deal with me as I have other conditions. When i told him about new symptoms of thirst, weeing at night, constipation for someone with ulcerative colitis he gave me a depository and said I could have a pill for an overactive bladder, which I politely refused, I take enough pills as it is. Lump o my neck is a lymph node and we need them ?? I will order private testing today and post results when received for the invaluable advice from the lovely people on here and then see the other GP in the surgery. after that, assuming results give me the information I need.

Thank you so much for replying and hope all ok with you.

Best wishes

Ann

SlowDragon
SlowDragonAdministrator in reply to norwood1

Which brand of Levothyroxine are you taking?

Many people find Levothyroxine brands are not interchangeable.

Once you find a brand that suits you, best to make sure to only get that one at each prescription.

Watch out for brand change when dose is increased or at repeat prescription.

Many many patients do not get on with Teva brand of Levothyroxine

Full private testing is next step to test antibodies, FT3 and vitamins

Vitamins need to be optimal, not just within range

What are the actual results for folate and vitamin D?

Vitamin D aiming to improve to around 100nmol

Low magnesium often goes with low vitamin D. Also common with colitis. Extremely common hypo problem especially if gluten is underlying issue

ibdrelief.com/learn/complic...

If you have high thyroid antibodies and not tried strictly gluten free diet then suggest you consider it for 3-6 months. Many many patients find it helps, very often significantly. Often improves IBD too

Changing to a strictly gluten free diet may help reduce symptoms, help gut heal and slowly lower TPO antibodies

Ideally ask GP for coeliac blood test first

amymyersmd.com/2017/02/3-im...

chriskresser.com/the-gluten...

thyroidpharmacist.com/artic...

scdlifestyle.com/2014/08/th...

drknews.com/changing-your-d...

thyroidpharmacist.com/artic...

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