?Hashimotos

[frenchreikimaster]

Hi, after a bit of advice. I have felt unwell for a number of months on Levo 100mg, and cynomel 0.025 mg. l live in France and thé formule of Levo was changed about a year ago. Anyway just changed Doctors as l lost faith in my previous one.my TSH looked like l was hyper but T3 and T 4 still in Range. She kept insisting on lowering my dose of Levo resulting in me feeling worse. New doctor sent me for a ultrasound which showed multiple cysts on both sides of thyroid gland and severe inflammation of lymph glands . From that l was sent for a scintigraphie (?? RAI scan). That resulted in possible viral thyroiditis diagnosis. I was off Levo for 4 weeks before this. Then blood tests, results as follows,

T3L 0.89(3.10-6.80)

T4L 1.06(12-22)

TSH 5.67 (0.27-4.20)

Antibodies anti-thyroglobulin <10 (<115)

Antibodies anti-thyroperoxydase 94(<34)

Growth hormone somatotropin

2.3(0.4 to 29.6)

I would be grateful for your thoughts as l go back to see my doctor on Thursday and l am feeling dreadful at the moment so thought processes not working very well.

Thank you in advance.

[greygoose]

Your FT3 is incredibly low for someone that has been taking T3. How much were you taking?

It was perhaps not the best time to do a thyroid test when you'd been off thyroid hormone for four weeks. What were you hoping to show?

Your antibodies are over-range, so you do have Hashi's, yes.

Two reasons why your HGH might be so low a) because of your very low T3 - you need good levels of T3 for the pituitary to be able to produce HGH b) because you have a pituitary problem - and that would explain why your TSH isn't higher, because with that under-range FT3, your TSH should be higher.

When are you going back onto thyroid hormone replacement? And how much are you going to take?

[frenchreikimaster in reply to greygoose]

I am taking 0.025mg of T3. He stopped the Levo 100mg as my TSH was 0.02 on that and he wanted to see baseline bloods. My results were confusing as both T3 and T4 were around top third of range with low TSH.

He did mention maybe my pituitary wasn’t working properly and maybe treating with T3 only but higher dose. I go back to see him on Thursday. He is my 3rd doctor in France and l am hopeful as he has Thyroid issues himself so takes a personal interest.

[greygoose in reply to frenchreikimaster]

Wanting to see 'base-line bloods' is just a ruse. It means he has no idea what he's doing but wants to seem to be doing something.

Having a pituitary problem doesn't necessarily mean you need T3 only. If you were taking 100 mcg levo and 25 mcg T3, I would imagine that your TSH was suppressed due to the T3 you were taking.

[frenchreikimaster in reply to greygoose]

I did suggest to my previous doctor that the TSH was suppressed due to T3 but she wasn’t having any of it. She reduced the Levo from 150 to 100before l left her . I was just feeling worse and worse.

[greygoose in reply to frenchreikimaster]

Oh, they just have no idea!

These are the tests for pituitary problems:

pituitary.org.uk/informatio...

There's no way of knowing in advance what dose of T3 you would need. Go back to 25 mcg and increase by 1/4 tablet every two weeks until you feel well. That's the only way to know.

[frenchreikimaster in reply to greygoose]

Thank you

[greygoose in reply to frenchreikimaster]

You're welcome.

[frenchreikimaster]

Thanks for replying, would l need something else for the pituitary problem? If l took T3 only , what dose would be right. ?

I have been messed around for years, took 20 years to get a diagnosis of underactive Thyroid 6 years ago. This is the nearest l have got to getting a proper answer. X