I'm new here, hello, I was diagnosed hypothyroid in 2011 but going by how I felt before diagnosis I think I may have had hypothyroidism in 2003 after being progressively tired for no reason.
I feel pretty neglected by the endo I see, I have ongoing symptoms and I had a drop in Levothyroxine dose from 175mcg to 100mcg back in April.
So I called the endo secretary on Thursday and told her I would like to know what my dose should be due to ongoing symptoms. She said she will let my endo know I called and that he will make a decision on what my dose should be. He has not contacted me since I called the clinic on Thursday and I am due a medication review next week which needs to be done as I have been getting very high blood pressure and also low blood calcium even though I take in a lot of calcium per day.
I am now seeking a second opinion from another endo since my one has not gotten back to me. He was also responsible for removing my T3 back in August 2017 despite a previous endo saying I would benefit from it due to poor conversion of T4 to T3 and that it would help me feel better, which it did.
When I spoke to my current endo for the first time he immediately took me off it, saying I was thryotoxic, the T3 is not good for me and he is anti T3, anti NDT and anti Armour anyway. Since having the T3 taken away my thyroid levels have not held steady at all.
With all this not knowing what is happening with my treatment it is making me increasingly depressed, anxious and tense.
My symptoms are really affecting my home and work life. If anyone could please advise I would be grateful. And any tips/suggestions about what to say at my appointment would be much appreciated as I go into all medical appointments on my own due to my husband and family not being very understanding about my illness and how it affects me. I am 30, I feel like I should do more with my life and not have to constantly go back and forth to GPs with ongoing symptoms.
! THYROID FUNCTION TESTS – GP – COMMENTS – SATISFACTORY – NO ACTION
(Warning – if planning pregnancy – discuss)
! Serum TSH level 4.25 mIU/L (0.27 – 4.20)
Serum Free T4 level 16.8 pmol/L (12.0 – 22.0)
Serum Free T3 level 3.3 pmol/L (3.1 – 6.8)