Will GP prescribe T3 at my end's recommendation?

[Bellabumfluff]

I feel like iv won a small victory. My endo has finally agreed to try me on combination t3 and t4... I didn't think she ever would. She's is writing to my GP to inform them but then said something like of they refuse to prescribe it then ring her secretary and she'll have to try and arrange it through the trust/hospital. Just wondered if anyone knew the likelihood of my GP refusing to prescribe?

[SlowDragon Administrator]

Is this an NHS endo. You need to look up your local CCG policy on Liothyronine.

In theory, if NHS endo says you have clinical need, then you should get prescribed. In reality many CCG's have blanket ban or are difficult and try to prevent GP prescribing

You may find this post helpful

healthunlocked.com/thyroidu...

[Bellabumfluff in reply to SlowDragon]

Thank you, that's really useful

[Supernovae in reply to SlowDragon]

Thank you for the link, I have contacted my local CCG three times about this but they just don’t reply....

Fortunately with all the advice on this forum, vitamins etc, thanks so much, my T3 is now okay and I don’t need to go down the T3 road. For now at least 😊

[SlowDragon Administrator in reply to Supernovae]

That's why we bang on so much about getting vitamins optimal and being on strictly gluten free diet, if Hashimoto's

Often that's enough to improve conversion so T3 is not required

Glad to hear it helped you

[Supernovae in reply to SlowDragon]

Just wished I’d known before, just unwisely trusted my GP.... ☹️ I can’t believe how different I feel now 😊

[SlowDragon Administrator in reply to Supernovae]

Took me over 20 years to discover! Only through help on here did I make progress

Doctors seem to think vitamins are irrelevant (no money to be made by big Pharma)

Believed medics when they said my negative coeliac test meant gluten wasn't an issue.

Seems virtually everyone with Hashimoto's benefits from gluten free, yet medics rarely even suggest patients try it.

[Supernovae in reply to SlowDragon]

I’m seeing my private endocrinologist in a couple of weeks and will have a chat with him about it. He’s lovely and thinks it’s completely mad that GPs aren’t allowed to check anything other than TSH. He’s written to my GP telling him to keep me on a high maintenance dose of Vit D and not to reduce my levo even though my TSH is suppressed. I feel someone medical is on my side 😊

[SlowDragon Administrator in reply to Supernovae]

How refreshing

Have you emailed his details to Dionne at Thyroid Uk for added to the recommended Thyroid specialist list?

Or are they already on the list?

please email Dionne at

[e-mail]

[Supernovae in reply to SlowDragon]

Will do 😊

[Bellabumfluff]

Thanks, she's already been quite strong in saying she wouldn't prescribe NDT... If I have to source my own, I will do though but I'm hoping her recommendation works and can try this first.

[knitwitty]

Hi Bella

I 'd also be tempted to write to your local MP and inform them of the situation, perhaps write to Jeremy Hunt while you're at it ( it could be the same letter).

It's amazing how quickly things can get sorted out if MP's get involved.

A family member had a problem that needed sorting urgently, it had been dragging on for weeks, when the local MP was contacted it was sorted within 36 hours, this was non medical but it's always worth a try.

Good luck.

[YSpencer]

Hi

I was delighted when my endo prescribed T3 and said l could have it on the NHS.

However my GP refused to prescribe it on the NHS saying they couldn’t “prove” it was the T3 , that l was taking from his private prescription, that had made me feel better.

I hope you have better luck than l did. Yvonne

[SlowDragon Administrator in reply to YSpencer]

If your endo was NHS then GP is obligated to follow experts advice.

They are electing to be "difficult" because the cost of T3 comes out of the GP practice budget.

healthunlocked.com/thyroidu...

Contact your local MP, pals group, write to Vince Cable, Steve Brine, Lord Hunt, Lord O'Shaughnessy and Jeremy Hunt, and Corbyn

theyworkforyou.com/debates/...

[YSpencer in reply to SlowDragon]

Thank you for this SlowDragon . I have just ordered from Germany so that gives me time to try and sort it out .