Found a good north west nhs endo. So relieved! + new results

[Salphy]

Just wanted to put this on here as I know when I was looking I found a few other posts and people looking for the same.

I got these results back this morning 6 hours before I was due to see an endo I could only find 1 review of from years ago at a different hospital and not on the thyroid UK list.

Full expecting him to only listen to tsh etc and want to reduce my Levo based on these results. (My results on the lower dose were tsh 2.52, t4 14, t3 3.78 same ranges.) So I was absolutely dreading that happening.

My last results on same dose showed raised t4 and just in lower end of range tsh. My private endo increased me to 125mcg and I felt even more hypo so I reduced back down and started to feel a bit better again (though still symptomatic.)

Anyway my nhs endo is happy with my results, not changing my dose, happy to consider request individual funding for NDT if that's what I want and I don't feel any better after starting slow release metformin for pcos as couldn't tolerate regular. Checked all my vitamins etc.

So I then had the courage to tell him I'd bought t3 from abroad. Thought I'd be told off but he said how did you feel? I only took 6.25mcg one day because I didn't want to mess my blood results but I had a very good day. He said great but if you're going to take it take it consistently then wrote to my gp saying he happy with results and I'm going to try t3 that I've bought and to prescribe the metformin SR then see him again in 2 months.

Honestly so relieved. He also said if I struggle to get the t3 I could see one of his colleagues privately (who I'd already heard of and considered seeing) for a private script if I didn't want to go on NDT as they can't prescribe t3 at the minute due to commissioners.

He said the 3 consultants all work very closely together and have to keep up their competencies and are very used to treating difficult thyroids. I'm going to email thyroid UK to ask that he's put on the recommended list just thought I'd write a positive post for a change x

[Scazzoh]

Sounds promising. A pity he isn't willing to prescribe T3 on the NHS as you obviously need it.

[trelemorele]

What do you mean by: they can't prescribe t3 due to commissioners?

[Salphy in reply to trelemorele]

Due to funding they won't allow it x

[shaws]

If you email Louise at Thyroiduk.org.uk and pass on his name for their files if you didn't get it from TUK. email addres below:

[e-mail]

It is such a relief when you consult with someone who is willing to also listen to the patient and is happy to include her/him in their consultations. Re PCOS - I don't have a link but this is a copy I took quite sometime ago and the doctor who posted it was an Adviser to TUK before his accidental death.

Multiple Ovarian Cysts as

a Major Symptom of Hypothyroidism

The case I describe below is of importance to women with polycystic ovaries. If

they have evidence, such as a high TSH, that conventional clinicians accept as evidence

of hypothyroidism, they may fair well. But the TSH is not a valid gauge of a woman's

tissue thyroid status. Because of this, she may fair best by adopting self-directed

care. At any rate, for women with ovarian cysts, this case is one of extreme importance.

In 2008, doctors at the gynecology department in Gunma, Japan reported the case

of a 21-year-old women with primary hypothyroidism. Her doctor referred her to the

gynecology department because she had abdominal pain and her abdomen was distendedmup to the level of her navel.

At the gynecology clinic she underwent an abdominal ultrasound and CT scan. These

imaging procedures showed multiple cysts on both her right and her left ovary.

The woman's cholesterol level and liver function were increased. She also had a

high level of the muscle enzyme (creatine phosphokinase) that's often high in hypothyroidism.

Blood testing also showed that the woman had primary hypothyroidism from autoimmune

thyroiditis.

It is noteworthy that the young woman's ovarian cysts completely disappeared soon

after she began thyroid hormone therapy. Other researchers have reported girls with

primary hypothyroidism whose main health problems were ovarian cysts or precocious

puberty. But this appears to be the first case in which a young adult female had

ovarian cysts that resulted from autoimmune-induced hypothyroidism.

The researchers cautioned clinicians: "To avoid inadvertent surgery to remove an

ovarian tumor, it is essential that a patient with multiple ovarian cysts and hypothyroidism

be properly managed, as the simple replacement of a thyroid hormone could resolve

the ovarian cysts."[1]

Reference:

1. Kubota, K., Itho, M., Kishi, H., et al.: Primary hypothyroidism presenting as

multiple ovarian cysts in an adult woman: a case report. Gynecol. Endocrinol.,

24(10):586-589, 2008.

[Salphy in reply to shaws]

That's interesting, I never had any symptoms of it until I was diagnosed hypo. It's the main reason in went to the gp being so irregular. Before that I thought I was just fat and lazy!