Hi there, thankyou in advance for reading the following :-
Why would I experience symptoms of RAI some eight years post treatment ?
For the fast 4 years I became very unwell with no saliva and a dry and burning mouth. My dentist suggested Sjogrens and I was referred in 2015. This came back negative but low ferritin flagged. In 2016 referred to gastroenterology - I had had both procedures before prior to RAI. The endoscopy was aborted, I had no saliva with which to swallow the scope. The trolley was swung around and entry gained into my bottom. The incessant pain I was experiencing in my mouth was also at the other end, in my bottom! I fainted with the pain, waking up with a saline drip in one arm and a heart monitor attached to the other. The procedure continued - negative for cancer ?
2017 I found this site and started my learning curve. I managed a dose increase back up to 125 Levothyroxine and a referral to endocrinology - I have been refused a trial of T3 as now my TSH is suppressed but I feel so much better and am getting stronger. My saliva has now improved and my dentist has managed to fit a bridge in my bottom front jaw. I seem to be at an impasse with my doctor and have been referred back to her by the endo - a decision which I am trying to have reconsidered.
I guess my question is, is this a common issue ? Did my thyroid die some 8 years after RAI and dump it's contents into my system, including toxic RAI remnants ?
I believe I have been dosed and monitored on TSH blood reads - I read that some people need to kept suppressed - could this be a contributing factor ? I have Elaine Moore's book Graves Disease - A Practical Guide - there is much to understand, and sadly, in the UK we seem not to have any aftercare in this speciality. Professor Toft's Counterblast only seems to confirm what I am currently up against and I am trying to consider what I do next ? I simply would like to know what has happened and why ? And what can I do to prevent this happening again ?
Any thoughts, and yes, I do believe self medication is an option as all is failing ?
Thank you all for being there,