I found this forum while doing some research on pains possibly related to taking Levothyroxine and boy am I happy to have found you guys!
I have been diagnosed with Graves autoimmune disease in January 17. That caused my thyroid to go crazy and was on Methimazole to regulate the thyroid for a year. Had terrible side effects (horrible hangover feeling every morning, head feeling cloudy...) that my Endo said didn’t exist...
Was so miserable (and after my 2nd Endo telling me my thyroid would never be normal) I decided to get a thyroidectomy 3 months ago.
Been on levothyroxine since, 75mcg at first and now 112mcg since my Endo thought I was still too hypo (my Free T4 is 1.5 and TSH is 4.84).
Ever since I increased to 112mcg I’ve suddenly had bad lower back pain, hip pain and this week excruciating neck pain.
My Endo who’s a big wig at the endocrinology department at a big hospital here in Boston is telling me my pains are not related to the meds... he doesn’t even want to hear it/consider it!
I’m very familiar with neck pain as I’m a chronic migraine sufferer too... that’s been somewhat under control with the Botox injection treatment I’m getting for it so I CAN’T go back to having neck pain again 😞 living with chronic pain is just not an option anymore!
Long story short, I’m reading a lot that Endo docs are not taking us seriously and that you have to figure things out on your own and so that’s why I’m here.
I’m in pain, totally discouraged at the prospect to deal with that at only 42 and I’m just tired, overwhelmed and down right depressed by the whole thing.
Are we all dreaming those side effects? Do you guys think getting a full panel on your vitamin and hormone levels is helpful?
Thanks for any help you can provide and I’ll continue to read all there is on this forum 😊