hypothyroid: TSH h 7.00 0.27-4.20 T... - Thyroid UK

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hypothyroid

ninja1 profile image
5 Replies

TSH h 7.00 0.27-4.20

T4 total 89.7 66-181

Free T4 16.40 12.0-22

Free T3 3.61 3.1-6.8

Anti-Thyroidp 13.9 <34

Anti Tglobin <10 <115

VitB12 335 145-250

Ferritin 64.1 13-150

Folate 28.60 8.83-60.8

I had a total thyroidectomy 23 years ago due to multinodular goitre

I am currently under tests for overactive adrenal levels

My mch is always at the bottom of the scale but I am not sure what this means

I am so weary and short of breath

My doc wont increase my thyroxine and I feel dreadful.

Any comments would be appreciated

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ninja1
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5 Replies
greygoose profile image
greygoose

Why won't your doctor give you an increase?

ninja1 profile image
ninja1 in reply to greygoose

because my TSH was 0.34 in April and I felt a little overmedicated so I reduced it to 75 Last week I started to feel undermedicated so I asked him to do my blood tests as I felt undermedicated, he refused so I had some bloods done at blue horizon and he wont accept them and says I have to wait until end of June for him to do bloods and not to alter my medication before then!!!!! He wants to try walking a mile in my shoes.. He is very awkward, meanwhile I feel rubbish so obviously I have put it back to 100 regardless of what he says although he is not happy. He says bloods done too soon and he wont accept them he has guidelines to follow.

greygoose profile image
greygoose in reply to ninja1

Sounds like a bit of a megalomaniac. Is there another one you can see? His attitude is wrong. He is not the boss. It is your health, your body and your life. He is not there to dictate to you, he is there to guide you. Your treatment should be decided by mutual consent.

If I were you, given his attitude, I would by-pass him completely, and buy my own levo and self-treat. His treatment of you is totally unacceptable!

SlowDragon profile image
SlowDragonAdministrator

A TSH of 7 is far too high.

What was last result on 100mcg, before you reduced dose?

FT4 should be near top of range and FT3 at least half way in range

All thyroid tests should be done as early as possible in morning and fasting and don't take Levo in the 24 hours prior to test, delay and take straight after. This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip, GP will be unaware)

Dr Toft, past president of the British Thyroid Association and leading endocrinologist, states in Pulse Magazine,

"The appropriate dose of levothyroxine is that which restores euthyroidism and serum TSH to the lower part of the reference range - 0.2-0.5mU/l.

In this case, free thyroxine is likely to be in the upper part of its reference range or even slightly elevated – 18-22pmol/l.

Most patients will feel well in that circumstance. But some need a higher dose of levothyroxine to suppress serum TSH and then the serum-free T4 concentration will be elevated at around 24-28pmol/l.

This 'exogenous subclinical hyperthyroidism' is not dangerous as long as serum T3 is unequivocally normal – that is, serum total around T3 1.7nmol/l (reference range 1.0-2.2nmol/l)."

You can obtain a copy of the articles from Thyroid UK email print it and highlight question 6 to show your doctor

 please email Dionne at

tukadmin@thyroiduk.org

Also request list of recommended thyroid specialists, some are T3 friendly

Professor Toft recent article saying, T3 may be necessary for many. Note especially his comments on current inadequate treatment following thyroidectomy

rcpe.ac.uk/sites/default/fi...

What supplements do you take?

Your B12 result- what's the top of range ? The range you have added is not full range I think

Do you supplement vitamin D?

You need to test that - vitamindtest.org.uk £29

ninja1 profile image
ninja1

my tsh was 0.34 but I like it about 1.5 otherwise I get short of breath

B12 range says 145-250 on blue horizons

Vitamin D was 35 in April, not sure of range

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