because my TSH was 0.34 in April and I felt a little overmedicated so I reduced it to 75 Last week I started to feel undermedicated so I asked him to do my blood tests as I felt undermedicated, he refused so I had some bloods done at blue horizon and he wont accept them and says I have to wait until end of June for him to do bloods and not to alter my medication before then!!!!! He wants to try walking a mile in my shoes.. He is very awkward, meanwhile I feel rubbish so obviously I have put it back to 100 regardless of what he says although he is not happy. He says bloods done too soon and he wont accept them he has guidelines to follow.
Sounds like a bit of a megalomaniac. Is there another one you can see? His attitude is wrong. He is not the boss. It is your health, your body and your life. He is not there to dictate to you, he is there to guide you. Your treatment should be decided by mutual consent.
If I were you, given his attitude, I would by-pass him completely, and buy my own levo and self-treat. His treatment of you is totally unacceptable!
What was last result on 100mcg, before you reduced dose?
FT4 should be near top of range and FT3 at least half way in range
All thyroid tests should be done as early as possible in morning and fasting and don't take Levo in the 24 hours prior to test, delay and take straight after. This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip, GP will be unaware)
Dr Toft, past president of the British Thyroid Association and leading endocrinologist, states in Pulse Magazine,
"The appropriate dose of levothyroxine is that which restores euthyroidism and serum TSH to the lower part of the reference range - 0.2-0.5mU/l.
In this case, free thyroxine is likely to be in the upper part of its reference range or even slightly elevated – 18-22pmol/l.
Most patients will feel well in that circumstance. But some need a higher dose of levothyroxine to suppress serum TSH and then the serum-free T4 concentration will be elevated at around 24-28pmol/l.
This 'exogenous subclinical hyperthyroidism' is not dangerous as long as serum T3 is unequivocally normal – that is, serum total around T3 1.7nmol/l (reference range 1.0-2.2nmol/l)."
You can obtain a copy of the articles from Thyroid UK email print it and highlight question 6 to show your doctor please email Dionne at
tukadmin@thyroiduk.org
Also request list of recommended thyroid specialists, some are T3 friendly
Professor Toft recent article saying, T3 may be necessary for many. Note especially his comments on current inadequate treatment following thyroidectomy
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My results
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Hypothyroid symptoms while on Levothyroxine
