High Ferritin but on Levo: Hi I have newly been... - Thyroid UK

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High Ferritin but on Levo

AussieInNorfolk profile image
10 Replies

Hi

I have newly been diagnosed as Hypo and Hashi

With bloods of TSH 9.68 (0.35-3.5)

TPAntibodoes 187 (0-34)

Ft4 10(8-21)

What I don't understand is my Ferritin is out of range 178(13-150)

B12 80(25-165)

Folate 10(2-50)

But Vit D 65 (50-200)

Can anyone help? What I am reading is Ferritin should be low.????

Should I be referring to an Endo for T3 tests and Prescription? Or should I buy myself onlin?

Could someone help me with online purchasing info ?

Thanks for 'listening'

Fiona

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AussieInNorfolk
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greygoose profile image
greygoose

I've never seen anybody say that ferritin should be low. But it shouldn't be that high, either. Ferritin is often high if inflammation is present. Did you have your CRP tested?

Your vit d, on the other hand, is too low. Are you supplementing that?

An endo might test your FT3 and he might not. But, with a TSH of 9.68, we know it's going to be low, so no point in testing it at the moment. Similarly, with such a high TSH, you can have no idea how well you ware converting, because your FT4 is also very low. So, best to wait until your TSH comes down to 1 or under, before worrying about T3. :)

AussieInNorfolk profile image
AussieInNorfolk in reply to greygoose

Ah Thankyou Grey Goose, I think what I meant was my iron should be lower. I am reading about all these people who have Hashis and their Iron always seems to be lower than range not higher than range.i am not doing anything for VitD

As the doctors didn't do that test, I did.

What do you suggest? I have an appointment tomorrow with a nice nurse practitioner

Thanks so much

Fi

greygoose profile image
greygoose in reply to AussieInNorfolk

Well, as I said, if inflammation is present, that causes the ferritin level to rise. But, we're all different.

I'm afraid vit d isn't my subject. Perhaps it would be a good idea to post a new question, just asking about your vit D. Then those that know will answer. There don't seem to be many people around answering questions today - plenty asking, but not many answering. It must be the Bank Holiday and the lovely sun doing that. :)

SlowDragon profile image
SlowDragonAdministrator

Some of us with Hashimoto's have high ferritin. It is more usually low, but can be high, possibly because of Hashimoto's

Better You vitamin D mouth spray is good as avoids poor gut function of Hashimoto's. Various strength sprays available. Perhaps start with 1000iu 2 or 3 times per day. Or you could buy 3000iu strength

Retesting via vitamindtest.org £29 postal kit in 2-3 months.

Aiming to get level around 100nmol

Treepie profile image
Treepie in reply to SlowDragon

My ferritin dropped from over 600 to 458 but has risen since at every test latest 900. I suspect alcohol intake is a factor and I am reducing but I was unaware that Hashimotos could give a high result,probably not that high!

SlowDragon profile image
SlowDragonAdministrator in reply to Treepie

What's the range on your ferritin test?

Treepie profile image
Treepie in reply to SlowDragon

30-400 ,the actual result was 919.

SlowDragon profile image
SlowDragonAdministrator in reply to Treepie

With a result that high GP should be investigating for cause, eg hemochromatosis

Tile profile image
Tile in reply to Treepie

That is seriously high. Alcohol will never give such a high reading.

Treepie profile image
Treepie

Was a Medichecks test,not informed GP who is retiring - early!

Will cut the wine and test again in September if not significant reduction will see a GP.

Thanks

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