Thyroid UK
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Talk to me about using Liothyronine or NDT

Hi folks

Following on from my post last week I need to explore using either T3 (probably the first option as that's what I was discussing with my endo) or NDT.

What's are they like? Pros and cons? How would i get hold of them? What do I need to do?

I am fretting a bit as I don't know what to do. I believe in the NHS so much this feels alien to me

4 Replies
oldestnewest

If your doctor prescribes T3 for you, you get it from the pharmacy just the way you get any other drugs.

I have the impression from posts here (I'm not in the UK so I have no firsthand experience) that NDT is difficult or even impossible to get in the UK because so few doctors will prescribe it. So synthetic T3 prescribed by your endo could be a good start. If you feel fine on T3 and T4, once you've tweaked your dosages to find the optimal maintenance dosage for you, then you would not have to worry about anything.

I also imagine that prescription T3 is covered by health insurance, whereas prescription NDT most likely is not.

If you prefer NDT, for whatever reason, and cannot get a doctor to prescribe it, you can always order it online. There are several Thai suppliers of Thai NDT (three different brands), and a few US based pharmacies selling NDT (Armour, WP, NP) and delivering internationally (much more expensive than Thai NDT, though).

Reply

Hi Eimear78

Many on the NHS are struggling to obtain T3 from

their GP/Endocrinologist due to the cost.

You may have to purchase it privately.

As many are struggling they decide to switch to NDT, again very rarely is it prescribed on the NHS.

You can purchase NDT from supplies in Thailand or USA (Armour).

You will find if you put your most recent blood results and give more background information, members will supply you with a reputable supplier.

Your GP may have a fit if you tell him you are self medicating, some are supported by their GP others aren’t and end up giving them a horror story about self medicating.

If you do this correctly it will work, off course you will have to arrange private bloods yourself to check how your thyroid is working.

Best wishes

Peanut31

Reply

I didn't explain myself properly Sorry.

The endo can't prescribe it for me but also understands that I am within my rights to source it myself.

It's not something I would've considered until now.

Reply

If an NHS endocrinologist says you have clinical need then you are ENTITLED to have Liothyronine prescribed on NHS

Initially via endo at hospital for three month trial, while dose is adjusted

Then care, monitoring and prescribing taken over by your GP

Do NOT accept the rubbish saying they can't prescribe.

british-thyroid-association...

theyworkforyou.com/wrans/?i...

See Improve Thyroid Treatment campaign on Facebook for lots of info and letter templates for fighting to get prescribed on NHS

Professor Toft recent article saying, T3 may be necessary for many

rcpe.ac.uk/sites/default/fi...

Clear legal outline

healthunlocked.com/thyroidu...

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