Thanks for replying. They were already talking about RAI as future treatment. We are hoping he can control it with medication but it’s still early days. Sad that we cannot trust the doctors.
It is far too early in your husband's treatment to make any decisions. The medication needs time to start supporting his thyroid issues. It is a long road ahead and the one thing above everything I have learned since my diagnosis of Graves and hyperthyroidism is to listen to what my body is telling me. When your husband's medication starts making him feel better he will know before any blood test results. There is no quick fix and certainly it is far to early to make decisions about any other kinds of treatment at the moment. It took about five months for me to start to notice some small changes and in this first year since January 2017 there have been twists and turns in how I feel. My message is allow himself time to recover physically, emotionally and mentally after the shock of the diagnosis.
Thank you ruthad. We are still in shock how this has gone so bad. At the same time we are happy that he doesn’t have type 1 diabetes. We are also hoping that his TED is at early stage. As you said he needs to listen to his body and look after himself.
For his TED he might find some comfort in various eye drops. I have two lots and both have made the condition less painful and more comfortable. Some days are better than others but it really helps to keep the eyes moist. You might want to ask if he can have eye drops if his eyes feel gritty and/or sore. The doctor will ask if he is having double vision and any other eye difficulties/vision issues so perhaps write down any eye differences he has noticed to take to the appointment.
If you don’t mind me asking? Did Graves have any impact on your husband’s fertility? Mine has always low morphology and antisperm antibodies. So far we were unlucky and can’t even attempt the IVF for the second time at the moment as his endo advised against it.
Thank you so much for responding. This really made us think. It is a hard decision. I’m not sure what life holds for us in that respect. The only good thing is that I’m fit as a fiddle so far but of course this doesn’t mean anything. I’m sorry to hear that your daughter and grandchildren are badly affected. My husband’s sister and mother have an underactive thyroid so this definitely runs in a family.
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