I was just diagnosed with hypothyroidism last December 6th, and have been on 50 mcg Synthroid (levothyroxine) since then. I am a 32-year-old woman living in Canada.
My symptoms have been: debilitating fatigue, brain fog/difficulties concentrating and thinking, excess sleep, apathy/loss of interest in previous interests, depression (that feels unlike any I've ever had), anxiety, hair loss, cold hands and feet, loss of day-to-day functioning (unable to work/study, perform regular tasks at home, etc), shortness of breath (especially after exertion), weight gain, increased appetite, and amenorrhea (my period, which had previously been quite regular, suddenly stopped for over two months prior to diagnosis).
Here are my thyroid hormone levels just at diagnosis (if the numbers seem strange, perhaps different units/ranges are used here in Canada):
TSH = 0.97 (range: 0.38-5.00 mIU/L), so on the lower side of normal
Free T4 = 10 (range: 12-22 pmol/L)
Free T3 = 3.0 (range: 3.4-5.9 pmol/L)
After over a month, my thyroid hormone levels have now apparently gotten better. But I was still too fatigued and brain foggy during my last appointment (last Monday) to ask my doctor for a copy of the report, so I have no idea to what extent they got better. She said we don't need to increase my dosage, because my levels are getting normalized. She has prescribed methylphenidate (a stimulant) to help with the fatigue, and it's early but so far it hasn't helped.
My period finally returned this week (albeit a very heavy one, with especially painful cramps), and my appetite is more normal, but everything else has been exactly the same. I still feel very, very sick with all the other symptoms. The worst are the crushing fatigue and apathy. I don't know if or how I'll ever return to work/study, given that I can barely get out of bed each day and spend most of the day unable to do much.
Because my TSH upon diagnosis was actually fairly low, and so was my estrogen (it has since become normal), my doctor has referred me for an MRI to check my pituitary as she suspects my hypothyroidism might not be a dysfunction of my thyroid (primary hypothyroidism) but rather secondary hypothyroidism due to possible pituitary dysfunction. But I won't have my MRI until April, meanwhile I continue feeling very sick and unable to function. I feel like my life is over (I am only existing, not really living), and I have had to contact a distress centre many times lately because I was overwhelmed with suicidal thoughts. I just feel like my quality of life is abysmal, and it's excruciating. I feel so physically and mentally unwell.
I don't know what is happening to me anymore. When I was diagnosed, I had the impression that things would improve with treatment; I was relieved to finally know what was wrong, and that it was something that there was treatment for. But why am I still feeling so horrible? I'm losing hope. Maybe I have something else? I feel so confused, scared, and deeply saddened.
I thought I would reach out, here, as I heard good things online about Thyroid UK. I'm sorry my post is so gloomy, but I would really appreciate any support/thoughts/guidance. Thank you so much.