burning up yet low body temp ,,,,: hello my name... - Thyroid UK

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burning up yet low body temp ,,,,

SJ59 profile image
SJ59
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hello my name is Shirley I have never heard of this syndrome before tonight I was just googling why I am burning up yet temp is 36c, I came across Williams syndrome and and symptom check list and am surprised I have every one of them one of them !!! I was kept in hospital at one time for a few days I thought it was my low bp but nurse said it was because of my low body temp but they didn't look into it !!at this moment in time I have cold virus and im constantly burning up !! im say in bedroom window wide open my body cold to touch but hot inside,,what do u think xxx

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SJ59
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helvella profile image
helvellaAdministratorThyroid UK

Shirley,

Are you sure you mean Williams syndrome?

en.wikipedia.org/wiki/Willi...

I suspect you might actually have meant Wilson's Temperature Syndrome - a very controversial diagnosis which is rejected by very many medics. (I am sceptical but not to the point of dismissal - I simply do not know.)

Blue_Bee profile image
Blue_Bee

Hi SJ, I have no medical expertise, so cannot advise from that perspective. What I can say, being Hashimoto’s diagnosed 20 months ago and still suffering major symptoms, although improving noticeably in the last 3 weeks.... what I can say is yes, I feel that my largest organ — my skin— is disordered. My temperature is usually in the low range, at the same time it often feels like my skin is burning up, but I am cold inside; woollen socks on my feet at night, with the fan on to cool the rest of me. Strange. That blissful feeling of homeostasis - when my skin feels “just right” - illudes me for all but a few moments here and there. The thyroid hormones govern all our major organs, our skin included. Sorry to hear you are affected by this symptom too.

Mintychristine profile image
Mintychristine

Hi Shirley Im Hypo I take 225 thyroxine and burn up all the time Its awful..the bain of my life Mine started about 3 yrs ago I hit the menopause and it kicked me in the teeth. I used to burn so much I would get a suntan I actually peeled. Other stuff went on and eventually ended up with RA Every Dr Ive seen endocrinologist gp's even Rheumy have sympathized but not identified it. Im not saying its anything associated with RA Its prob thyroid but it's hell My face burns up my heart rate It takes about 10 mins Sometimes food triggers it or just taking my tablets even during the night. I do know mine are getting worse and at my next app I'm going to stress how bad it is I hope you get some answers take care x

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