Wilsons Syndrome
Hi, just after some feed back/encouragement, I have stopped Desicated thyroid as my temps were very low averaging 96.9 degrees F and started T3 sustained release my temp initially came up to 98.6 but now has dropped to 97.4 I continue to increase my dose now on 50mcg per day on day 5 should I keep increasing to a max of 180mcg per day. This is my first cycle
I cannot answer your question but this is some information re Dr Wilson's protocol from Dr John Lowe.
Dr Lowe (deceased) was doctor/scientist:-
If you go to the date July 5, 2000 on the r/hand side to read his comments.
and
February 4, 2008
Welcome to the forum, Angus1.
Temperature doesn't always recover when patients have been hypothyroid a long time. What were your recent thyroid results on NDT and what dose were you taking? 50mcg T3 is equivalent to 2 grains NDT. 180mcg T3 is a huge dose equivalent to over 7 grains NDT.
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I am not a medical professional and this information is not intended to be a substitute for medical guidance from your own doctor. Please check with your personal physician before applying any of these suggestions.
I worked my way up to 6 grains of NTD over 3 months initially I felt a slight boost mainly heart rate, my rt3 was Ok and T3 and T4 high normal. I still had no improvements on fatigue, brain fog, lethargy. I am now on 50mcg per day of sustained release T3, any advise?
Angus1, It's possible you weren't converting the T4 in NDT to require such a high dose. I'd stick with 50mcg T3 for 6 weeks and check FT3 level before increasing further.
Have you had ferritin, vitamin D, B12 and folate checked? Low/deficient levels are common in hypothyroid patients and can cause fatigue and low energy among other things.
Thanks for the reply.
I have had low iron and have been taking iron for 2 months, Also I take VIt D, and B12.
I believe the thyroid hormone T3 isn't getting into my cells as per Wilsons Syndrome, Dr Wilson says you can go up to 180mcg per day of T3 then if that doesn't get your temp stable, ween off and do another cycle, some people take 3 cycles
Angus1, I wouldn't care to risk heart arrhythmia by taking such high dose T3 just to normalise temperature. I don't think it's worth trying to force it. It took more than a year after thyroid levels were optimal for me to feel warm and almost 2 years before I started to perspire when I'm warm.
You have probably increased your dose beyond what your metabolism can handle . I did the same thing when trying to determine my T3 only dose. I had temps around 98 initially and then it started dropping again into the 97s. When I tried increasing from this point, my temps only continued to drop. So I tried the opposite. Once I decreased my dose, my temps rose back into the 98s. You might want to try that. It may take a few days of experimenting to see improvement though since you are using sustained release.
Not loosing weight and very low body temp!
T3 Only - Low temp but high pulse.
Low body temp.
low body temps despite 75 mcgs T3 daily. 
Normal body temps at last.
