I don't know about you but I wanted you to know that personally, I am celebrating the small victory we hypothyroid sufferers won regarding the prescription drug list and the NHS decision to allow T3 back on the NHS list... I am sooo happy! In fact...I am still bubbling with excitement.
Like thousands of you, I too, was so angry about the 21st century attitude toward hypothyroidism....and I was left fuming over the many injustices and ignorance (and ARROGANCE) surrounding which drug should be prescribed to us sufferers from people who, before the debate/review, probably had never even heard of the word Liothyronine let alone understand its meaning. (even my own MP probably didn't even know what hypothyroidism was until it hit the news headlines - thanks to TUK)
Like many of you, I did my part - such as completing the NHS survey (and talking many of my family to supporting me on this)...I also wrote to the 10 most influential decision makers in the country which included Sir Bruce Keogh and Simon Stevens (NHS England) and I wrote to every Parliamentary Minister with even the slightest association of Health. I know they all got my letter because the response I got from Simon Stevens secretary.( Simon Stevens couldn't be bothered to reply personally!) thanked me for all my letters and offered a collective response.
The fact that so few of us (5,800 to be exact) were able to influence the decision makers sufficiently should be seen as an absolute victory. And I sincerely thank all those who like me, fought like tigers (behind bars!!) to get this victory.
Yes I know that we still have to jump through a few hoops to get it.. and No..it isn't great having to join the queue to get a decent Endo who is thyroid educated and 'patient compassionate' .but the fact is... its a GREAT STEP FORWARD......and those who are wholly dependent on T3 (me included) may no longer need to panic or become highly stressed about how they are going to obtain their next supply line. because once prescribed...you can be sure of a reasonable quality drug that is fully licensed.
To improve our health care even further, we may need to use the power of our voice again to effect further changes......but for now...it is a small triumph for all those of us who suffer.
I urge all those who are newly/recently diagnosed and currently being treated with T4 therapy (Levothyroxine) ...but still feeling like **** to have the courage to challenge your GP and request the Endocrinologist pathway to T3.
T3 has been my life saver....
so again, a sincere thanks to everyone who took the trouble to make our voice heard...and most especially, thank you to Lyn Mynott and her team. Getting the issue broadcast on BBC was absolutely brilliant!!!! thanks.