Isn’t it time someone started a petition on the Parliament Web site? 100k sigs and a debate is required. Also tweet Matt Hancock at Dept of Health ‘& NHS CEO Simon Stevens and anyone else who can force the tablet price down to reasonless levels. This is a price gouging monopoly
Why can’t the governmentcontract to have these tablet made for it with a company that’s happy to take a decent profit not hold the nhs and people’s lives to ransom killing them in the process slowly and painfully.
There have been many petitions set up over the years. Most of them get no more than a handful of people signing and they never really take off. Even the most successful petitions don't make it to 50,000 people signing - and that's true not just in the UK but in the US as well, which naturally has more hypothyroid sufferers.
If we want change, then I doubt very much that petitions are the way to go. I've sometimes wondered about having a demo in London. But I have this vision of turning up to find that there are only about 10 people there, we'll all look embarrassed, then we'll shuffle off and go home. I have wondered about raising money for half page and full page adverts in some of the biggest newspapers - but how much circulation do physical newspapers have these days? And how many people switch off ads on the web? And since ads that do get shown are personalised it will be people with thyroid problems who go looking for info on the web advertising to themselves.
Yes, I’ve wondered about a demonstration too - but then I imagine a demo of very fatigued, overweight people with constipation and only half of each eyebrow who have to have a sit down half way through the march because they feel weak and their plantar fasciitis is playing up. And if it’s a freezing cold day we’ll get hypothermia, be too sluggish to move or no one will make it. Could go either way in terms of public sympathy!
Half way through the march? That's very ambitious. I wouldn't last ten yards!
LOL
This petition is a case in point. It was set up over a year ago, and since then, only c36,000 people have signed it, yet there are 92,000 members in this group alone and the petition itself mentions 3 million UK sufferers. I was reading recently, about an entirely different petition, I forget the purpose of which, but it garnered 100,000 signatures in the first 24 hrs alone. I'm not sure what that says about those who complain about poor treatment but haven't signed the petition. You might like to sign it change.org/p/itt-campaign-g...
However, you're perhaps not aware, but a substantial pan-group dossier was recently submitted to Lord O'Shaughnessy with the political support of Lord Hunt of Kings Heath, addressing the whole gamut of problems in this field, together with many personal stories of disadvantaged thyroid sufferers. It was a big piece of work involving a lot of effort from a number of different interest groups, and much work continues behind the scenes; but now I guess we wait for Lord O'Shaughnessy's response.
Here is the dossier: drive.google.com/file/d/1c2...
Signed sealed delivered
Or should that be signed shared and donated (!)
We definitely need to push the petition just for more of that public awareness and of course parliamentary debate.
I know people can be apathetic about petitions and us hypos sometimes struggle to get up in the morning let alone fight but we really do have to keep pushing.
Could the petition be posted periodically on the forum?
The blurb does seem quite long-winded so I wrote my own little note on Facebook when I shared it.
Hopefully non hypos will also sign it if they better understand the key point
The Government did issue two new licences last year for two new T3 suppliers
Trouble is they both came in at identical price to Concordia T3
Suggests a Cartel?
Government frozen in Brexit headlights, unable to consider much/anything else
New law passed and on statute book last summer enabling them to force the price down.....but suspect they are frightened of extremely powerful pharmaceutical lobby who might/would fight it all the way
Meanwhile vast numbers of patients forced to self medicate, or self fund. Many getting private prescription for T3 supplied from Germany, unfortunately that option looks doomed too after Brexit
Don't believe all the scare stories about Brexit - especially as the government is doing its utmost to assure it doesn't happen. They need us more than we need them.
EU pharmacies can only dispense prescriptions written by EU doctors
So that could be a big problem for many patients on here
Please sign this petition!
Private Prescriptions 
Has anyone else had a reply to 'Humphrey's' template letter and call to write to Jane Ellison through their MP ?
Increasing price of liothyronine
