Sent this to Author of today's article in the Times
Dear Billy Kenber,
Fantastic article in the Times today. Is there any chance you may be doing a follow up on how these price increases actually affect real people, people who are unwell and systematically having their medication taken off them due to cost. I am particularly talking about liothyronine (T3) the ONLY licensed product in the UK for thyroid patients who don't thrive on Levothyroxine (T4). The consequence of this action is people have to self medicate and resort to purchasing liothyronine off internet sites and abroad which every one knows can be dangerous. But desperate people have to resort to desperate measures. I would also like you to know that Aventis-Sanofi sell Cynomel, branded (T3) for approximately 1.8Euros for 30 tablets over the counter in France, with a Prescription. Mercury Pharma charge the NHS £104 for 28 generic T3 tablets. By coincidence I contacted Aventis today asking whether it would be possible for them to market Cynomel in the UK because of what is happening to people like me and why NHS are stupid enough to pay rather than licence Cynomel. Members of HealthUnlocked Thyroid forum, to which I am a member have been concerned for a very long time about the increase in cost in the UK for T3 and the fact Mercury have a monopoly. We could see the writing on the wall so to speak. Our worst fears have come to fruition with some members having had their prescriptions stopped and appeals to the CCG being of no use. It seems the NHS answer to these obscene price increases is just to stop patients having it instead of licensing another product. Many more of us, me included are waiting for a call from our surgeries to say we are no longer eligible for T3 and going back to a very poor quality of life or sourcing medication from unregistered sources. I will tell you my story from thyroidectomy to present day as I am sure will many off the Forum if you are interested in doing an article.
Yours sincerely ( a very fed up, T3 reliant person caught in the crossfire of avarice and idleness).