I have at least a 10-15 year history of illness which I suspected back then to be Hypothyroidism and saw a private Doc who just told my GP to give thyroxine and charged £200. she lowered y dose as I had heart palps, then eventually told me to stop taking them last year. In Feb my TSH was 5.5 [0.3-5.5] which came back normal no further action. I have been very ill, lot of back and hip pain, couldn't eat, havent slept properly for many years. Cancelled our holiday in August on departure day as too ill. Ive been to A and E 4 times as my Doc told me to go there if still in pain, but obviously they just do obs and thats it. I insisted on seeing and Endo and she also referred me to Rheumatologist. My NHS Endo appointment was in the afternoon. So all tests were taken about 3pm, however I did insist that the thyroid ones should be done first thing and fasting, she gave me an envelope to have them done again in the morning. Here are the results:-
TSH 3.0 mu/l [0.3 - 5.5] mu/L
T4 11.1 [10.0-19.8] pmol/L
T3 4.7 [3.5-6.7] pmol/L
Vitamin D 50
(I was not given ranges for these) I always have to ask for ranges @ Gp and Hospital, they never give them!!!
TSH 3.8 mu/l [0.3 - 5.5] mu/L
T4 10.7 pmol/l [10.0-19.8] pmol/L
T3 4.7 pmol/l [3.5-6.7] pmol/L
Endo says all normal, but noted the antibodies of <1300 done by Gp were positive, but with current levels of TSH treatment is not warranted. GP said my antibodies were normal, no further action!
I was hopeful that Rheumatologist may be more helpful but she was very rude and kept saying she didn’t have time! My notes and x-rays were not available. She wouldn’t listen to anything I said and refused to accept that my joint and muscle pains could be linked to Hypothyroidism. She ordered an MRI for lower back, hip and hand pain and chest X-ray and took more bloods. I see her again 19th December.
I am seeing GP on 21st November and wondered if anyone could tell me what info would be best to sway her back into thinking this is Hypothyroidism, she is the kind that would consider good well sourced information which I have plenty of but it needs to be short and concise really. I may drop it in for her to read prior to appointment so she can mull it over prior to appointment.
Many thanks for your help.