Rather wasteful, but for complex reasons my dh ended up having NHS and Medichecks blood tests done on the same morning. I thought the results would be very similar, but no. I thought I'd share them because they illustrate the inconsistency of TSH and also the results of limited NHS testing.
The top part of the image is from the NHS test. The GP (who is lovely) asked for TSH and T3. The lab decided not to do T3 as the TSH was in range. They changed it to FT4, but didn't do it. The GP looked at the results and said "normal" (heard this before!) I understand the GP doesn't want to make him more ill by treating if he's not hypo. Meanwhile my husband is failing before my eyes, so what is wrong???
The bottom part of the image is the result from Medichecks. The blood was taken just 45 minutes before the NHS bloods. He had no food / exercise/ anything major happen to him in between. I simply drove him from one hospital to the other. On looking at the Medichecks results, the new consultant (I recommend) said he'll try treatment for hypothyroidism. After months of worry and getting nowhere, we were dancing down the road at the mere hope that something might help! I'm just not sure how the GP is going to react, and how to show him the Medichecks results when he did his own hmm...still - better to be unpopular than ill I reckon.
So I guess this is an encouragement; if you or someone you love are struggling to get a diagnosis, and if you can possibly afford it, get a private full thyroid panel from Blue Horizon, Medichecks etc. It seems scary at first, but it's not that complicated. If you're watching someone you love failing before your eyes, and they're not getting treatment, boss them into it and organise it for them because they probably don't feel up to it themselves.
You book the test online. You pay for it. They send the kit in the post to you, usually next day. You either prick your finger (not good for bigger tests) or you phone your local private hospital and ask when they take bloods. Often you can just turn up with the kit and they do it without an appointment. You may be able to get your surgery to do this bit. Get the blood early in the morning no food. You pop the bloods in the letter box and get the results online. Medichecks does results for many things next day, but you have to wait 14 days for any test with RT3 in it. If using Medichecks, order on Thursdays cos it's cheaper, and look out for special offers. It's just like Aldi! You can do it! Knowledge is power!
Of course there is a risk that you will do the full tests and not find anything amiss with your thyroid, but at least you'll have eliminated something, which should help with finding out why you are ill.
PS I don't have shares in Medichecks, in case you were wondering!