I posted last week to say I had a partial thyroidectomy 25 years ago. Have never felt well since. Currently on 125mcg thyroxine. So my results are as follows:
Your vitamin D is too low. Needs to be around 100nmol/L
GP won't prescribe, so just buy your own. "Better You" mouth spray is easy to use. Perhaps try 3000iu for 2-3 months and retest - you probably need to continue to supplement at maintenance level after. Testing twice year
Vitamindtest.org.uk - £28 postal kit
Do you supplement ferritin? If not this needs investigation it's very high.
Can be hemochromatosis
Once you get vitamin levels sorted and stable retest , if reverse T3 still high you will need to consider reducing T4 and adding T3.
If you want a T3 friendly endo email Louise louise.roberts@thyroiduk.org.uk for list of recommended thyroid specialists
Avoid all soya including soya lecithin, and fluoride free toothpaste is good idea too
Thanks so much SlowDragon. So the first 2 things to sort out are vitamin D and vit B12. I already suspected both of these were low. If i show my B12 result to G P do you think he will test me and sort it out. When I asked for a B12 test before he refused.
I must admit I am a bit worried about the ferritin!
So you think I should leave T3 until my vitamins are better? Thank you so much.
No. I had large collection of cysts on my thyroid causing a goitre like appearance. They couldn't be sure back then what it was without removing it. I was so fatigued at the time that I could barely walk. They told me afterwards that I had autoimmune hypo and put me on thyroxine.. my thyroxine has been increased and decreased over the years but I have not seen an endo since the op.
Thank you. I have considered going gluten free, but no i wont try that before i get my vitamins sorted. By the way. Would it need to be really strict, as in separate knives, chopping boards etc etc for the gluten free thing to really work?
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