Hi tiredBFmum and welcome to the forum.
1) is advice/responses received from fellow patients or are there drs/pharmacists/forum admin on here too?
This is purely a patient to patient forum, we are not medically qualified but speak from personal experience and what has helped us.
2) anyone have experience of iodine deficiency testing? and why isn't this mentioned a lot on the website?
I have done the urine iodine test. I chose the non loading test as my research led me to an article which discussed flaws in the iodine loading test (the one where you take iodine before testing). It's discussed occasionally.
3) would love to talk to other breastfeeding mums who have hypothyroidism symptoms and whether reference ranges for lactation exist
You would be better making a separate thread about this, making sure the title is directed at the people with this experience.
4) my result was serum free T4 12.8 pmol/L [ref range 12.0 - 22.0]
and TSH 2.13 mIU/L [ref range 0.3 -5.0] - it seems to my slightly untrained eye that my free T4 is borderline low and my TSH is norm.
my vit D is deficient and ferritin 45 ng/ml [15.0 -350] so looks suboptimal
Yes, your FT4 is very low in range and your TSH is classed as normal.
Ferritin needs to be at least 70 for thyroid hormone to work (our own or replacement) and half way through range is recommended. You should be supplementing for your level or eating liver regularly, maximum 200g per week due to it's high Vit A content, can raise it, also include lots of iron rich foods in your diet apjcn.nhri.org.tw/server/in...
If your Vit D is deficient, what have you been prescribed? If the level was below 30 have you been given loading doses?
If you are taking a Vit D supplement then there are important cofactors needed when taking D3
D3 aids absorption of calcium from food and K2-MK7 directs the calcium to bones and teeth where it is needed and away from arteries and soft tissues where it can be deposited and cause problems.
D3 and K2 are fat soluble so should be taken with the fattiest meal of the day, D3 four hours away from thyroid meds.
Magnesium comes in different forms, check to see which would suit you best and as it's calming it's best taken in the evening, four hours away from thyroid meds
Check out the other cofactors too.
5) test was done in morning but not fasting. does this matter? i have read since i joined this forum that fasting is best but i was never told this so deffo ate breakfast beforehand
Yes it does matter. Eating lowers TSH, so fasting overnight before a blood draw is important when looking for a diagnosis, to avoid a reduction in dose of Levo or when looking for an increase, as it will give the highest possible TSH when coupled with the earliest appointment of the day, no later than 9am, earlier if possible.
6) i have a very challenging relationship with GP!!!! currently getting testing for coeliac alongside which is super difficult.
Many of us do!
is it worth me getting the antibodies and free t3 tested given my results and how can I get GP to agree?
Definitely get antibodies tested, and FT3, to complete the picture. With a 'normal' TSH and low FT4/FT3 you could be looking at central or secondary hypothyroidism, where the problem lies with the pituitary or hypothalamus rather than the thyroid. Not many doctors know about this so you can research it and offer information if necessary (that should be fun with your GP!!).
GP wont be able to get one of the two types of antibodies tested, and unlikely to get FT3 tested either. The two types of antibodies are Thyroid Peroxidase (TPO) and Thyroglobulin (TG). NHS rarely does TPO and almost never does TG (maybe if an endo requests it). FT3 test is decided by the lab even when a GP requests it, generally only done if TSH and FT4 are way out of range.
You might be better off doing a private fingerprick test to include these. And if you do, then include the vitamins and minerals if you've not had B12 and folate tested.
Medichecks and Blue Horizon both offer a variety of thyroid bundles and are good value, with turn around time being 24-48 hours after receipt of your sample.