Thousands of ill patients could be AT RISK after thyroid hormone drug price rockets, Daily Express.

[Kitten1978]

Please see the latest article in Daily Express on the NHS England proposal to withdraw T3: express.co.uk/life-style/he...

Both Thyroid UK and Improve Thyroid Treatment (ITT) are currently running campaigns to stop the withdrawal of T3. Please see thyroiduk.org/tuk/T3-Campai... and check the ITT facebook group: facebook.com/groups/ITTCamp...

ITT campaign needs 100,000 UK signatures to be discussed in the UK Parliament: change.org/p/itt-campaign-g...

Currently only 21,000 people have signed. Please sign and share the petition.

We are all in the same boat and we need to work together to ensure better treatment of thyroid disorders in the future.

Thank you for your support!

Kitti1 & Pamela0106 for info.

[Kitti1]

Well spotted Kitten1978 , I was expecting Michael to email to let me know when it would be published. So thank you for letting me know ! Good news that the T3 campaign is in the news. And many thanks to Dr Renee for her help.

[Kitten1978 in reply to Kitti1]

I still don't know what's happening with Billy's article ;(

[Kitti1 in reply to Kitten1978]

Still waiting to hear

[AngieAsh]

Unfortunately right in the middle of this article is a related article which sends you to a page all about how a trial by Professor S on mildly hypo pensioners shows that T3 is a 'waste of time and money' express.co.uk/news/uk/80722... Not good to have put that in there.☹️

[Kitti1 in reply to AngieAsh]

I guess Michael didn't have control over the links included online

[AngieAsh in reply to Kitti1]

Hopefully a lot of people will not bother with the related stories and just read the main one. How a study based on just geriatrics and mildly hypo ones at that can lead to such a sweeping statement as T3 is a waste of time and money is beyond me, it seems harmful.

[Songbird1960 in reply to AngieAsh]

The article refers to levothyroxine being a waste of time and money in some cases, not liothyronine.

[phronsias]

Hi

" the NHS said it was withdrawing funding for a vital drug." I haven't been told by my endo or GP that Liothyronine will be withdrawn.

Regards

Frank

[Pamela0106 in reply to phronsias]

Where in the UK are you Frank?

If England then you should read this (Section 4.9 covers Liothyronine).

england.nhs.uk/wp-content/u...

It's already being withdrawn though from a number of CCG's across the country. Not all, but many.

By the end of this consultation (depending on the outcome) it could be withdrawn from ALL.

If you are in Wales or Scotland it's a post code lottery at the moment still on whether you get it or not. I'm in Scotland. Mine has been withdrawn.

It appears the other NHS directorates outside England are already following suit.

[phronsias in reply to Pamela0106]

Hi

Thanks for the link, its makes grim reading, Yes, I live in England, nobody has mentioned deprescribing my Liothyronine. I am intolerant to Levothyroxine, so what alternative medication is left for me?

Thanks again

Frank

[Pamela0106 in reply to phronsias]

Glad to have helped Frank.

You can sign the petition to help stop the withdrawal here:

change.org/p/itt-campaign-g...

Perhaps worth speaking to your doctor (or maybe best to just not mention it yet - wouldn't want to tempt fate).

They are proposing Levothyroxine T4 for everyone but your case is exactly why we are fighting this. T4 does not work for everyone and we need alternative options xxx

[phronsias in reply to Pamela0106]

Hi

I signed the petition, I would really like to know what alternative medication there is for Levothyroxine intolerant patients.

Regards

Frank

[Pamela0106 in reply to phronsias]

So would we xx

Let's hope we find out xx

[phronsias in reply to Pamela0106]

Hi

Do you mind me asking if you are or were prescribed Liothyronine only or in combination with Levothyroxine?

Thanks

Frank

ps I take 60 micro grams daily of Liothyronine only

[Pamela0106 in reply to phronsias]

I was prescribed Levothyroxine only to begin with. Had to fight like crazy to get a trial of Liothyronine. Finally got it and within a fortnight of starting it they told me it will not be continued and if I want it I must source it privately.

Shocked and disappointed 😢 but I'm fighting it with MP support and all sorts. X

[SilverAvocado in reply to phronsias]

Hi Frank, there isn't really an alternative. This is why this is shocking news, as patients are being forced into Levothyroxine when it's not suitable for them.

The only alternative in a sense is to buy your medication privately, not on the NHS. If you get a private prescription you will end up paying the same price the NHS does for tablets, which is several hundred pounds a tub. Or you can source your own on the Internet, or travel to countries like Turkey where it's available over the counter for a couple of pounds.

[Pamela0106]

Great job ITT Campaign in getting this published! ❤️❤️❤️❤️

[Hidden]

Great to get this into the press! Hx

[silverfox7]

I read the following link re elderly people S well as apparently I now fall into that bracket! I've also read in a fairly recent article-so wish I had kept I -but dementia patients tested for thyroid problem and all in the group have too low FT3! Can't see them shouting about that!

[Kitten1978 in reply to silverfox7]

Most of us experienced hypo brain fog. I seriously wonder how many elderly patients with mementia could be miraculously cured if they were treated with T3 or ndt....

[Kitten1978 in reply to Kitten1978]

22,265 signatures

Please SIGN and SHARE this petition: change.org/p/itt-campaign-g...

We need 100,000 UK signatures to make sure it's discussed in the Parliament.

[Kitten1978 in reply to Kitten1978]

Improve Thyroid Treatment petition has reached 22,335 signatures

Please SIGN and SHARE this petition: change.org/p/itt-campaign-g...

We need 100,000 UK signatures to make sure it's discussed in the Parliament.